We made the best of his hospital birthday with some decorations and TV watching. It wasn't ideal, but he says he had a good day, all things considered.
But now that his birthday has come and gone, we're both getting a bit stir crazy. Today is day #25 of this hospital stay. If you've ever spent more than 72 hours in a hospital, you know how soul-crushing it can feel at times. He's within the same 4 walls with pokes and prods and not his bed. I'm slowly going insane with balancing all the aspects of our lives. Again, 2019 is just kicking us in the behind.
A little bit of good news--he's finally at his full feeding tube rate. That took quite a long time to get to, and it still has its speed bumps. The last few mornings, he's woken up in intense pain. This morning, he once again was miserable and couldn't get relief until he took a 2 hour break from feedings. We need to have more talks with the nutrition team to get this side of things fully under control because it's made for some really difficult days for him. We're hoping we can find a plan that allows for the proper caloric intake along with the chance to take breaks from the feedings for his body's sake.
His fevers have been long-gone since they started him on an antibiotic, but they're still not sure of the exact source of the infection. They're continuing to pull new cultures almost daily waiting for it to clear up in his bloodwork. There's a chance he may need to be on some longer-term IV antibiotics, but we're not 100% sure on that at this moment.
All that to say, there are quite a few things to be figured out before he can come home. It may be this week. It may not be until next week. I'm honestly unsure. For every area of progress he seems to make, 10 other issues seem to pop up. So we're working through it.