James’s Story

Site created on January 13, 2021

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Pat Bass

Last week I went home for a few days to regenerate, read the mail, pay bills, and play golf...

I returned to Jax on Thursday, April 1st.  They started Jim on oral steroids, prednisone that day, which made him rather psycho that night mixed with all his other drugs...but it does seem to be helping.   He was able to stand up with a walker and moved to the chair, and he sat up on the side of the bed to eat lunch, at least for 3-5 minutes.  They are gradually reducing his post transplant medicines, anti-seizure in particular, so this will help balance the psycho stuff, plus he is no longer getting Dilaudid.   He will continue with the 40 mg fentanyl patch every 3 days and oxy as needed, but he has greatly reduced his requests for this too.  So whew, that's a giant relief to me.  

So progress is happening... very slowly.   I will go back up on Thursday for the weekend. 

Re: cancer - it appears the transplant has done it's job!   All by himself his WBC = 3.2, HBG=8.3, and platelets = 48.  Those are still low numbers, but exceptionally better than before and BY HIMSELF!!  No supplements. 

Its possible Jim maybe discharged next week, with the assistance of Home Health Care for physical therapy and any blood draws.  I think they may want to keep testing his blood regularly for a few more weeks. 

That's all I know for now. 

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