Happy New Year! I just wanted to share an update regarding Jenny's Journey.
Jenny is able to eat and drink, even though it hurts to swallow and her taste buds haven't returned. She and Andrew were able to go out and celebrate their anniversary last week, something she hasn't done in a very long time.
Jenny has also needed infusions daily since completing radiation, however she has recently graduated to only twice a week. The PICC line remains for her fluids, transfusions, and supplements, but her spirits are high and she continues to get stronger each day.
Jenny was able to come home on Friday and spend the weekend at home. She has been resting but still feeling pretty rough. Her potassium and kidney levels have been off. She is scheduled to have radiation today. After today only two radiation treatments left!! Yay! She is expecting that they will give her fluids after her radiation treatment. Keep praying that her potassium and kidney levels stabilize and that she is healthy enough to stay home and finalize her treatments this week.
It has been a rough few days for Jen. Although it was great that she was able to have her last chemo treatment on Friday, it has really wreaked havoc with her body. She struggled over the weekend with swallowing and nausea. She was able to have her radiation treatments on Monday & Tuesday but, also needed fluids. There were problems with her IV so, they decided to put in a PICC line on Tuesday. Once the PICC line was in, they admitted her to the Hospital so that she could continue to receive fluids. She had a swallowing study on Wednesday. She passed the swallow study with no problems but, it seems the liquid for the swallowing study has irritated her mouth and she is in a lot of pain. This is prohibiting her from being able to eat or drink very much and she is still having some nausea. The fluids are helping her to stay hydrated so, she will need to continue to receive the fluids until she is able to drink and eat a bit more. She only has 4 radiation treatments left but, those are on hold as they try to get the pain and fluids under control. Please continue to send prayers and good thoughts her way.
Wonderful news to report today! Jenny was able to have her radiation and most importantly her last chemo treatment today! So, she is on track to finish with radiation on Monday, November 25th (6 more treatments) and no more chemo!! Yay!! She is feeling as well as can be expected. She was able to eat some egg drop soup and a couple of lo mein noodles last night - big win! :) I am lucky to be here with her this weekend and we are looking forward to our time together. Thank you all for the prayers and good vibes -- they are working!! Keep them coming!!
Great news to share this evening! Jenny was able to leave the hospital and go home!! She has been able to eat, drink and swallow pills. Of course still very carefully and not large quantities but, enough that they let her go home. She was excited to go home and be with Andrew & Maddy. The last 12 treatments will be difficult and we are hopeful that she will be able to continue them consecutively. She's not completely on the healing path yet but, good enough to go home for now. Keep the prayers and good thoughts coming. They are working! :)
Today's news: Jenny reports that IV fluids have stopped which they hope will help her blood pressure to lower. Her platelets are still low, but not low enough to require anything but monitoring at this point. They started treatments back up today - the sooner they start, the sooner she finishes them - #21 is in the books! She has 12 to go!!! She is still on strict throat and voice rest, but is making strides.
Today has been a fairly good day for Jenny! She tried to rest her vocal cords, but...
Jenny was able to get some "food" down. It was chicken broth, but it was something. She has also been able to drink water today. Baby steps, but she is celebrating! The docs didn't do the swallow study today and she is still in pain. Andrew, her parents, Pincus, and a priest from Mimi's church all stopped by today. She is still in pain,but Jenny is focusing on the positive and that is - she got some food in her!!!! Keep praying that the positive continues.
Jenny started radiation and chemo in October but, has been struggling with eating and pain. She was admitted to the hospital today as she hasn't been able to eat or drink since Thursday, October 31st. They have been giving her fluids and pain meds. They are concerned that she has the flu along with the complications from the radiation and chemo. Her radiation protocol has been postponed until she is a bit better.
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. Many of you are aware of Jenny's long journey with cancer. She was originally diagnosed with Leukemia in 1996 at the same time that she was completing her Master of Arts in Education Degree. After two bone marrow transplants, graph vs. host disease, and fighting the complications of the transplant, she was finally able to start her career in teaching in 2003. Prior to radiation for her leukemia, Jenny had an experimental procedure to freeze one of her ovaries. A few years after she started teaching, she met her husband, Andrew who was teaching at the same school. They were married in 2013. In 2014, she suffered another setback with a stroke. Fortunately, Andrew was with her and they were able to get her to the hospital quickly. She was able to make a full recovery in a few months. In 2017, they had their miracle baby, Maddy. Maddy is one of a very few babies that have been born using this experimental method. She was born premature and had a 3 month hospital stay. She is now a thriving, happy, healthy toddler getting ready to celebrate her 2nd birthday. Unfortunately in June 2018, the fight with cancer began again for Jen and her family. Jen was diagnosed with tongue cancer and had to have a portion of her tongue removed. Her physicians continued to monitor her as they were concerned that she would develop cancer in her lymph nodes. In August 2019, this concern was realized. She had her lymph nodes removed in September and is now undergoing radiation and chemotherapy. Jenny has been a Patient Advocate for the National Bone Marrow Registry as well as an Honored Patient for Team in Training. She has supported other Patients through their cancer journeys and been a source of strength for others even through all of these trials and complications. Jenny has remained positive and maintained her sense of humor. She has been fighting cancer and complications almost continuously for 23 years. Her story is an amazing testimony to triumph of spirit and fortitude. Please help support Jenny with words of support, hope and encouragement. We have started a Go Fund Me account for Jenny if you are able to provide monetary support this would also be appreciated as Jenny and her family focus on her treatments and recovery. You can find a link under the "ways to help" tab.
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