Jenny’s Story

Site created on October 30, 2019

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Jenny P

EJ turned 8 months old last week and it has been the best month of his life. He has been thrilled to go on long hikes in the woods, sleep in the camper, boat at the lake and fish in the river. Even though eating continues to be a challenge he likes sweet potatoes enough to stain his nasal cannula oxygen orange! We are soaking up a time that we can play mom, dad, and baby instead of nurse, patient and emotional rock. Eddie is working by himself in an excavator at a job site just a few blocks away and the COVID thing has made my choice easy to stay at home with EJ instead of going back to the ER. My job is now to get this baby chubby enough for surgery and he has made it to 13 big pounds!!! Haha as my brother says our family is raising twigs. Oh well one ounce at a time. 

There has been no changes medically so we just enjoy with this summer with this energetic joyful baby till the end of August when we go back to Denver for check ups. 

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