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Journal

October
24
2018

Update from Jeff

- [ ] Hello everyone. This is Jeff with an update on my GBM journey. Last month after the latest MRI scan, we began to suspect we were running out of viable treatment options. After this months’ MRI and consult with the Radiologist and NuroOncologist, we all agree that we have exhausted all reasonable “curative” options, and since side effects are becoming more and more complicated to resolve , it was time to reconsider my treatment strategy. After discussing it with family and friends and reviewing the medical data out there, I’ve decided to focus all my efforts on comfort issues instead of “curative”options. The biggest obvious change is I’ve discontinued new chemo drugs and visits from the The Visiting Nurses Association and replaced them with a more aggressive partnership with the Kansas City Palliative and Hospice Care-Nursing team for regular health checks and mobility assistance. They are a wonderful team that has already shown great compassion and knowledge. One outcome i am working on is an early December social event to meet and welcome everyone to the new year It is especially important to me since my original diagnosis suggested the median life expectancy for a GBM patient was about 14 months, making it unlikely i would be here for another Christmas. So as they say in Vegas. Im playing with house money so “LetsRoll.”

Jeff

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Comments

  • Jason Sandusky : Jeff, I know over the years we both moved on to bigger and better things, but I will never forget where we started. You were one of the most inspiring and upbeat guys I have ever met. No matter the situation, you never quit. I have been reading each update praying for relief for you and your family. It has taken me a month to find the words to type and try and explain what our relationship meant after your last update. I started in the truck world young and wanting to learn, and as we finally became co-workers your words and attitude inspired me to always want more and strive to be the best. I owe a lot to you Jeff. Your words of positive affirmation in many aspects was always appreciated and never will be forgotten. I will keep sending prayers to you and the family and wish you all nothing but hope and faith. Please keep us updated on the social event as I would love one more time to share experiences and hang out with you. Keep smiling and making the best out of every situation, like I know only you will! Love you buddy!
    11/14/18
  • Rodney Clevenger : Jeff we haven’t talked a while but I just wanted you to know that you will be in our thoughts and prayers. I will always remember the great times at the ball fields and Branson brings back some good ones for sure and Colombia too.
    11/14/18
  • Joseph Ondriezek : While the years and miles separated us, somehow our paths crossed again and I'm so thankful for that. There are people in our lives that we come across that are unforgettable and you're one of those! Whether it's your sense of humor, your smile, your energy, or your caring spirit, this is what I've carried with me all these years. Many people walk this earth and barely make a ripple. You however, seemed to have touched many and you'll be in all our hearts until we all meet again. God bless you and your beautiful family...
    11/3/18
  • Karen Hallouer : After reading the latest chapter in your journey, it’s hard for me to know what to say. I’m sure it was very hard for you to write it as well. I guess heartbroken says it best. I know that you are tough and strong and will fight for as long as you can. I hope you know how much I love you guys and know how much you mean to me. I will continue to keep praying for you in this courageous journey. Stay positive and hang in there.
    10/29/18
  • Susan Fuhrmann : Jeff, Jim and I just read your update. I have reread it like 10 times now. Having tears in my eyes and only imagining all that you have and are going through. You are such a positive guy and you are an amazing man. You are so brave and a fighter. You are in inspiration to all that know you. Know that we love and care about you. Our thoughts and prayers are with you , Dianne and the kids always.
    10/28/18
  • Susanna Mallon : We love you all and are thinking of you❤️
    10/27/18
  • Brenda Bryan : Jeff, I read this on Wednesday, and again yesterday, and again today (Friday). And each time I just want to reach out and give you a big hug. I can't imagine all of the emotions you and your family are going through, but I know you are an amazing man with so much love to share. I pray for God's strength for you and Diane, Kyle and Emily. Know you have touched so many lives! Let me know about the December gathering!
    10/26/18
  • Andrea Nguyen : Sending all our love.
    10/26/18
  • Paula Slyker : We are so saddened to hear this news but knew from the beginning you would fight like the warrior you are. You and your family are in our thoughts and prayers.
    10/25/18
  • Kay Schorzman : I can’t express more than what others have said. Ditto. Prayers and Love. ❤️Kay
    10/25/18
  • Jenny McCoy : Love you all and will be praying. 💕
    10/25/18
  • Chris Ripper : You are an amazing person and I'm honored to call you my friend. We'll keep you all in our prayers. Looking forward to our next get-together. Tater tots and milkshakes?
    10/25/18
  • kelly parker : very emotional to read this. i understand well the choice for quality of life over length of life. with tears in my eyes i send hugs and a huge amount of respect for your integrity with this difficult choice.
    10/24/18
  • Jeff Brizendine : Jeff, I have struggled all day to wrap my head around this news and cannot begin to imagine having to make such a decision. But then I remember the bravery and courage you have displayed throughout this journey, and I realize it's just the kind of man you are. You continue to inspire those of us who know, love, and care for you each and every day. I am honored to call you my friend and always draw strength from your grace and mettle. I will continue to pray for your comfort and peace of mind. Diane, Kyle, and Emily, I hope you know there are an army of people wrapping their arms around you and praying for strength and peace. We are, and will always be, here for each of you. To all of you, may God bless and protect each of you during this time. We're rollin' with you J-Dub!!!
    10/24/18
  • Michelle Meade Mammen : Jeff, reading this hurts my heart. I wish there was something we could do or say to help. You're such a strong and courageous man and we're keeping you in our prayers. We'd be honored to come to your social event and see you again. Brent & Michelle
    10/24/18
  • Cinda Brady : Jeff and family, please know that the entire Brady family is with you in any way needed. Jeff, you continue to be an inspiration daily. Prayers continue for your comfort. 🙏🏻❤️ We send love to you all.
    10/24/18
  • Brandi Bobo : Jeff - You are the bravest person I know and I am so proud of you. You are a role model to us all. Even in this ugly battle, you have remained positive and still have a sense of humor. That shows how strong you are. I would be honored to celebrate the new year with you and your family. I know that I can't say or do anything that will make this better but in your honor, I will do my best to make every moment count and I will remind others to do the same. Sending love and hugs to you, Diane, Emily and Kyle. Brandi
    10/24/18
  • Linda Parker : I am so very proud of you, Jeff. You inspire us all with your courage, wit and dignity. I will celebrate your life every day and look forward to ringing in the new year with you. All my love.
    10/24/18
  • Bob Rollin : You are very inspirational Jeff. Keeping you in my prayers and looking forward to the social event.
    10/24/18
  • Donna Lane : Jeff you are in my prayers each day.
    10/24/18
  • Joyce Murray : Jeff-You and your family are an inspiration to us all. Your courage and dignity are second to none. I am speechless and heart broken. Sending love and continued prayers to you and your family. Joyce & Gordon xxxx
    10/24/18
  • Michelle M Jones : There are no words. So I will scream. I HATE, HATE, HATE the "C" word! And I hate that it has affected so many in my life. But do know, it doesn't win! As hard as it was to read your post, it was still full of your positive energy and humor. So, it doesn't win! It would be my honor to be at your social event in December and I'll bring the dice. However, I already know we are both winners - I for having known you and you for the great example of a life well lived. Love, prayers & hugs to you and your family.
    10/24/18
  • kathleen jacobs : I saw this pop up in my email and was pretty sure I didn't want to read it. Emotions are all over the place as I feel like someone has punched me in the heart... or stomach... or both. The way cancer doesn't win is to do what you have to do on your terms. I will be at any function you have. Let me know how I can help. Big hugs.
    10/24/18
  • Andrea Kellgren : The Kellgren family is sending you love and prayers of comfort. We are here for you all.
    10/24/18
  • Sheryl Becker : Jeff, I just happen to be sitting at my computer when this came through. Emotions are swelling up as I reply. You know we support what ever choices you make. Your recent battle with side effects has distracted our attention from the formidable opponent you are up against. In the big picture quality trumps time. Thanks for sharing with us. We're in for any/all gatherings that occur. S & L
    10/24/18
  • Marci VanBebber : You're in my thoughts and prayers <3
    10/24/18
  • MARIA THOMAS : Sending all my love and prayers!
    10/24/18
  • Katheryn Ronnau-Bradbeer : Jeff, you are courageous!
    10/24/18
  • Kerri O'Brien : Hugs to you and your family. You are in my thoughts and prayers.
    10/24/18
  • Kelly Wills : Continued prayers for you and your family. You are a warrior and I look forward to seeing you in December.
    10/24/18