Jeff’s Story

Site created on September 3, 2019

Jeff was diagnosed in 2013 with a very rare disease, Paroxysmal Nocturnal Hemoglobinuria also complicated by other medical issues. He is currently on the path to a bone marrow transplant. We appreciate all your prayers and support!! If you have any questions on how you could support them further, please reach out to Jamie Herberg or Justine Jorgenson.

Newest Update

February 03, 2021

Journal entry by Jamie Herberg —

Tomorrow Dad has his "one year" post transplant appointment (the 7th is his actual 1 year "birthday)
Please be praying for an amazing report and that everything looks like it is supposed to. It has been such a journey and we can't even believe it has been a year already!
Read More of the journal titled "February 03, 2021"
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