I Had PPMS. I had HSCT to STOP the progression. I Had PPMS. I had HSCT to STOP the progression. This is a reminder from husband.  

86 days post

Lets talk roller coasters🎢....I have never liked them and don't think I ever will!
What a roller coaster this whole journey has been! Some super Highs to some super lows that I have honestly never experienced.  I am only almost 3 months post and I can't expect too much yet, I understand. It doesn't make me not want to see my end result NOW!! Patience has never been easy for me!  Just get it done!! Ha, if it were that easy. 

Life Is Good!

Walking. I have days that I know if it's PT day that will be the only exercise I will get that day. If not, I got nothing!

Then there are days that I go go go and do too much and then I can't walk.  It is a bummer as I am usually not finished with what I was doing....and if you know me I hate not completing things. "Let it go, Let it go"--still working on that song! I still haven't figured out how to limit my good days so they don't end in not walking?! 
So many things are so much better for me tho.  I feel my "CogFog" is much better, having to pee all the time, my balance, memory. Little by little I am seeing improvement I don't realize are improvements until I have time to think about it.

Physical Therapy has been a life changer for me.  I have the most amazing PT gal, Toni! Everyday I am getting stronger and stronger!  Maybe not in the way everyone else can "get strong", but for me this is Gold! On the 1st day she had asked me what I wanted out of PT, I told her just to walk again.  The 2nd day I went back and told her I wanted to walk again but, my goal is to run a 5k even if it took 3 years to do it.  I was feeling a bit too confident, but we will see! She pushes me to go beyond what I think I can do and is sneaky about how she incorporates the mental into the physical!  

Emotions, well those are cra cra!  I am a pretty emotional person anyway, ask my HSCT family, LOL. ..  Being at home away from all the hub-bub you have a lot of time to reflect on your life, which can really mess with your head. Life was easier in Mexico when we were able to chat with warriors that understood what we were going through.  Not to mention, the hair!? Those need to start growing a bit faster.  

Numbers, they have been up and are currently down... Drs is Mexico said don't check them until 3 months.  Drs here wanted them done ASAP so he could keep an eye on them.  I can tell when my numbers have gone down, my energy level will is 0.  Praying for good numbers this week!  

MS has already caused it's damage!  I am still working on realizing this.  Hopefully we have stopped the progression and things won't get worse. We pray that by doing HSCT things will get a bit better.  Time will only tell.  It's such a mental game at this point! Thank goodness for husbands that always think the glass is half full. 

I can either sit at home away from people and do Nothing or I can get out (with my scooter or walker) and do things! This may always be a part of who I am, and trust me it isn't an easy thing to accept....work in progress...
I pray that 1 day that 5k will be part of my life, but if it isn't.  I can scoot along side of anyone that wants to run it with me!

We have had a Beautiful addition to our Amazing family, Lil Miss Ezra Fe, and I couldn't be more in love!  We were also excited to hear that we will blessed with another one in March!

All the More reason to Keep on Keeping on!!

Life is Good!

Jeanne
XOXO