Jayce’s Story

Site created on June 29, 2023

Welcome to our journey. Jayce is a 14 year old boy who loves baseball and playing his gaming PC. He's honestly one of the sweetest kids I've met. We went from a normal family, enjoying life to not so fast. I thank you for joining our story and hope you're here for the end when we celebrate his victory.

Unfortunately, Jayce was recently diagnosed with a rare leukemia that 2 kids get a year... in the country. In 13 years, 29 kids have been in the same shoes as Jayce.

Here's a bit of a back story:  I'm February of this year, Jayce was diagnosed with Juvenille Idiopathic Arthritis (Juvenile RA) . He had been in pain and had random swelling for a couple months and we finally decided something was really wrong. Thanks to his amazing doctor, she had everyone's ran and a referral to Helen Devos within 5 days. 


Devos diagnosed him with Junior RA, put him on some meds and shots, and sent us on our way. Jayce progressively got better and was starting to be himself again. He was getting pain relief, and he was feeling good....until he wasn't. On Mother's Day, he started not to feel well, and from there, we were in a quick spiral. He got a 103 fever, he was cold, he had mouth sores like I have never seen. He was weak, and he was losing weight...all in 4 days. Saturday morning, we went to the ER, and within 2 hours, they advised us something was wrong and we were looking at a lengthy stay.


That Monday, we did a blood transfusion and a bone marrow biopsy. Tuesday, Bronson and Helen Devos came back inconclusive, and the results were sent to Mayo for review that Wednesday we were released with a book on how to cope when your child has cancer. Our heart sank. This wasn't happening to us.  Fast forward to June 5th, I get a call with good news, Devos believes it may have been a reaction to his humeria combined with a virus and we might be in the clear. GREAT!! I will take a fluke over cancer anyday!! June 13th, Bronson calls, Mayo is back. The results indicate Jayce has a rare leukemia, we need a PET scan. June 14th PET scan. June 15th results are in,  barely anything shows on the scan, we need another bone marrow biopsy. Good news....we have a 50/50 shot it might be something else. His case was sent to MD Anderson in Texas who said the cancer Mayo diagnosed him with is so rare, it can't be. 


On June 19th, we do another biopsy. They tell us to stay positive. We are sending it directly to MD Anderson and Mayo, and it should be about a week for the results. They're waiting for it. At this point, we had been so up and down that we just needed answers. Waiting was the worst. Last Monday, the ever dreaded call came in. Mayo doubled down. It was time to schedule a port implant. MD Anderson has come back and confirmed. Jayce has a rare leukemia that 29 kids in 13 years have had....2 kids a year, and ours is one of them. This can't be real. 


The official diagnosis is  called Blastic plasmacytoid dendritic cell neoplasm aka natural cell killer.  This  cancer usually attacks older males and is accompanied with a rash, Jayce is or has neither. He confirmed he is the 1st kid this year to get this horrible disease.  We have agreed to allow the local university to place his case in their books as they have never seen it before or may never see again. We also have donated his bone marrow to a lab somewhere where it will be kept at negative 70 degrees for future studies. And maybe be used as a comparison when another family is looking for answers.

We decided to create this page for our  friends and family to follow along through the good the bad the ugly. To watch the highs and help us through the lows and to cheer him on while he completes these next 8 months of chemo. And maybe if another family just needs someone to watch as they are going through the same thing, that's ok too. We don't know what we are doing and what to expect, but I do know we have to stay positive and strong for Jayce, and that's what our family and village are here to do.

Newest Update

Journal entry by Alisha Bender

Hi friends, I realized it's been quite some time since I've updated. Its way more fun to update when we have good news, when the weeks suck you get absorbed in the sorrow and don't really want to do anything, which is where I feel I am stuck at right now.

We are almost halfway through Stage five. We have our 3rd treatment on Monday and then just two miserable ones left to go. We were so excited to hit this stage. We had high hopes it would be a glimpse of what the near future will look like, until it wasn't.

Jayce has been in bed more often than not these last three weeks. His stomach has hurt almost every day to where he can't eat. When he does eat, one out of three, he's vomiting. If he holds it down his stomach kicks up even more and the pain becomes so severe he just cries. He doesn't want to eat, get up, walk, nothing. I think in the last 21 days we've had maybe 3 or 4 good days. I live for those days even though they are few and far between.

On top of his stomach his face and neck have broken out into a horrible itchy rash. From what you ask, who knows!! Just another thing to irritate him when he's already down. His nose bleeds have been obnoxious lately as well. I don't know how this child has anything left in his body after the amount that pours out of his nose. Oh, and lucky him, the mouth sores are coming in with a vengeance.

I'm hopeful if we can get through these last couple weeks of treatments, maintenance will be where we can catch a break, but I am beginning to doubt that as well.  I am trying to stay focused and keep our minds on the eye of the prize but as each day ticks on it gets harder and harder but every day, I put a smile on my face and tell Jayce it's almost over and we're going to be okay.  

Mom's been struggling pretty hard these past two weeks.  I don't know what it is. Maybe it's because the end is coming. Part of me is exhausted mentally and I think that is playing into it. Saturday while Jayce was napping I left the house and headed to my besties because it's my safe space to lose my shit at. I would be lying if I said the mom guilt wasn't eating me alive while I was there but its the place I can do with no judgment, no coddling, just listening. What I love about them is the honesty. They both try to boost me up and tell me we have to keep pushing and they couldn't be more on point, but Nichole also looked me dead in the face and said, you know I can't help you right? I can't make it better. And she's right. She has fixed so much with me when things have hit the fan but this one, I just have to get through on my own and its tough. So many people want to help, and I appreciate it so much, but in the grand scheme of things, it's something I just have to get through. To be honest, I am not sure how I've made it this far. 

I know I'll get out of this rut soon; he will get a good day and it will reset my mind like it always does, I just have to patient and wait for that day to come.

Until next time, hopefully it's a better update :)

Love, the Palmers.

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