Jaxson’s Story

Site created on January 3, 2022

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Brittany Tiller

   Today we left fort Dodge at 6 am this morning to travel 3hrs to Sioux falls for his 24 hr eeg.  He has had a really good day today and that we are thankful for. He isn't to happy about the fact he is in a crib but it's for his safety. Jaxson has been eating all day long like normal and drinking lots of milk, ate 2 cups of ice cream 2 cups of jello and most of his lunch today and all of his supper. Tomorrow sometime we will get the wires off and probably keep his hat and wires for the books. If we can... despite the crazy cold weather we are super thankful he has had such a good day.         Yesterday he had a total of 4 seizures in one day. We speak to his neurologist  in the morning so hopefully we find something out. 

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