Journal entry by Traci Fogliani-Kennedy —
Hi everyone! This is Traci, I wanted to post a quick update. We are home now, got here last Monday. It was a very long exhausting trip, but it went well. Jaxon is doing good, he hasn’t had any complications with his new device aside from the discomfort of healing from the surgery. He is happy to be home and has been spending some time with friends. He really just wants this whole thing over with so that he can go on with his life. Who can blame him! I wish I could say the same for me! I’m struggling a bit, I’m trying not to sit and stare at him all day but that is what I want to do to make sure he is OK .
We have an appointment on Wednesday with a Cardiologist to learn what’s next. We will keep you posted.
I continue to be overwhelmed by all the love and support we have received from near and far. It truly has meant the world to us and has helped to make things a little more bearable! Thank you all sooo much!!!!!💛💛💛
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