Friday... was a long day.. he went for a stress test first thing in the am.. did ok with that.. after that he tried to stand for the first time in 3 weeks... his heart rate went through the roof.. pretty sure it got just as high with him trying to stand for the first time as it did when they did his stress test.. after that, we had to get a cat scan of his head bc he was really confused and eyes were kind of sluggish.. that came back ok.. he did not sleep Good Friday night.. was up and down all night.. pulled his feeding tube out twice and didn’t even realize what he had done.. we finally had to cuff him to the bed.. just to make sure he didn’t pull it out for a third time..
saturday... the light of day was ok.. head was a little clearer.. still very tired and restless.. our goal for Saturday was to try and sit up 4 times.. we got three down and he was done for the day.. the reason we needed him to be able to sit up especially right now was bc he was supposed to have a pulmonary function test done on Monday to see where his lungs are at.. and if they were ok and our pulmonologist felt as comfortable as he could feel with everything, then we could move to the transplant committee and see what they were going to say..
I actually left the hospital over night for the first time in 3 weeks to spend the night with our baby girl.. Jason’s twin stayed with him. He slept all night aside from when the nurses were doing something with him..
and that brings us to SUNDAY... it started out decent.. he was tired.. but we figured he would be after pushing himself Saturday.. I got back to the hospital around 7:30-7:45 and got him up around 8:30ish I think to eat his breakfast.. after that his brother left to go spend some time with his beautiful family.. and our baby girl came and saw him.. she got to hold her daddy’s hand and tell him she loved him and kiss him before It all went south..
he got his stomach tapped around 1 Sunday, which we wanted so that he could be more prepared for his PFT’s on Monday.. they didn’t pull all the fluid off.. they only pulled 4 liters just so they didn’t tank his blood pressure so they could keep pulling on dialysis...
around 2 his blood pressure started to go down and his heart rate started elevating some.. they put him on some meds to help his blood pressure stay up and turned off the pull of dialysis.. that did NOT do the trick.. between 5-6 every doctor that works with Jason was in the room.. and he CODED..
his heart STOPPED!!! He was NOT BREATHING!! They started compressions.. pushed an amp of eppy.. did 3 round did compressions before they got him back.. there had to have been at least 20 people in the room after he coded..
pulmonology- intibated him
hepatololgy and nurses- for compressions
a surgeon- took the lead bc he was bleeding internally..
im sure there were more people in there, but all I could do is sit there and watch my husband. His body limp.. not breathing.. it had to be one of the loudest rooms in the hospital at that time but I couldn’t hear any of that.. I just saw him.. laying there.. and all I could think of was.. is this really happening?? People kept asking me if I wanted to leave and I kept saying no.. I’m not leaving him.. so I stood there watching these people that I have grown to trust pound on my husband’s chest to try and start his heart again.. and it may have only been a few mins but it seemed like a lifetime.. when his heart stopped, so did mine.. and it didn’t start again until they said they felt a low pulse..
after that, they have pumped him with at least 13-15 units of blood products in the last 6 hours.. they took him for a cat scan of his abdomen and then took him to interventional radiology to see if they could stop the bleeding..
what we find out is not something that gives me much comfort.. YES the bleeding has slowed.. YES they are watching him closely... NO we are NOT out of the woods.. his liver is GONE!! YES he needs a new liver.. but if we can’t get him healthy enough to get done getting tested for his evaluation.. then idk what we will do.. it’s not something I can or want to think about right now..
*bleeding to stop
*remove as much fluid from him as possible so his lungs don’t fill up again
*keep his blood pressure and heart rate good
*willpower for him to keep fighting
pray for our baby girl!! She doesn’t know what is going on, but just pray for her!! She needs her daddy, but at this point, I can’t make that promise to her and it’s breaking my heart!!!