James’s Story

Site created on October 14, 2020

  My 2020 start off looking good.  A fun trip to Porto Rico and a Windstar cruise the first week of March. From there it has all been downhlil.
    So, a very quick summary of a very long and complicated medical journey with a little more information.....from Nicki, Jim’s wife.

     We were working on what was going on with Jim's brain since early 2019 and then COVID blocked the road. Once we finally were able to move forward through a video appointment with a neurologist at UC Health in Denver, the results were confusing, and they thought it was normal pressure hydrocephalus-NPH (too much spinal fluid backing up into the brain). Even at UC Health they only see a couple cases a year. So, Nicki got on the internet and found a wealth of information at Mayo Clinic and requested an appointment. We were accepted, scheduled a date (July 20) and made plans to head out there driving our RV.

     We were now at late June when a call came from our family doctor who was reviewing the many tests the UC Health doc had ordered, and he did not like some of the results. He referred us to another doc. When that doctor's office called to schedule an appointment, we learned he was an oncologist. UGH!! Thus, began our newest medical journey even before we had completed Jim’s brain malfunction diagnosis. After much more scanning, pricking, poking and bloodletting, Jim was diagnosed with multiple myeloma—a blood cancer in the bone marrow, which is considered incurable, but treatable.

     So, took my husband to the brain doctor and came home with a husband with an incurable but treatable (so they say) cancer. Jim's cancer treatment started as soon as we return from Mayo Clinic (late July) using a biological drug administered subcutaneously—a procedure newly approved by FDA. Jim would be reassessed late September.

     We did continued on our journey via RV driven by Nicki to Mayo/Rochester, MN--an awesome and amazing place--to have Jim tested for his neurological problems. The results are he absolutely has NPH which has treatments but because of his cancer and age, he is not really a candidate for any of them. However, all that extra spinal fluid muddies the diagnosis for anything else.  In addition, multiple myeloma usually creates a little brain fog because of all those cancerous plasma cells floating around in the blood making it very thick. All the consulted docs are sure there is more going on (when in doubt, Mayo double and triple checks everything). I, for one, never considered the possibility there could have been more than one kind of brain degeneration occurring at the same time, but Jim blew that belief out of the water. The results of all the tests indicate he could have up to four or more additional brain deteriorating things going on. So, the best diagnosis they could come up with is "early degenerative brain disease complicated by NPH."

     Because our life is so boring and mundane, we have purchased a townhouse which is getting rehabbed and have put our current home on the market in the next couple weeks. Timing sucks, but the perfect townhouse, which are few and far between in Glenwood, came on the market and we actually put it under contract while in Rochester at Mayo. One of the things that makes it so perfect is location--2 blocks from my daughter who is a nurse.

     Jim is still mentally mostly very good. Talking to him or sitting across the table over dinner, you would hardly know there is a cognitive problem or serious cancer. The cancer treatments cause a lot of fatigue so frequent naps. He is very good at covering up and when he says or does something kind of off, most people just pass it off as a bad day, his age or something else.  I struggled convincing doctors there was a cognitive problem.



      Fast forward to Saturday, October 10….

     Jim started running a high fever, was disorient, fell and I could not get him up so called the paramedics. They transported him to Valley View Hospital in Glenwood Springs. Here we sit for five days during which time he celebrated his 85th birthday on October 13 while incarcerated. And the source of the problem is….hmmm….?  Maybe an infection that they cannot pin down. The really bad news is that we have learned the cancer treatment is not working and the multiple myeloma is get more intense.

     Next steps…….

     More tests to try and figure out the source of the fever/infection and decisions on additional cancer treatment.

More later…..Prayers and good thoughts appreciated, Nicki

Newest Update

Journal entry by Joe Luetke

     Jim’s grave marker was installed on May 20, 2021, in Rosebud Cemetery at the corn of 8th Avenue and Rosebud Lane. His plot is situated such that he will never be crowded because there is a sprinkler line run on one side and a bench on the other. Unlike the cold and rainy day he was buried, it was sunny and beautiful, and I was surrounded by family. This was the first time I had seen the completed stone which was created at the Marble Art Gallery out of Colorado marble (used in the Lincoln Monument among others). I loved it! The carvers installed it with great care and respect while also having some fun. They suggested that our young grandchildren should put hand prints in the cement in which the stone was being set, and we had no objection from the cemetery employee…. only in small town America! He shall rest forever with those little hands of love. Other things that are perfect – he is close to me and family, the American flag is flapping overhead, mature trees are everywhere (which have come into full leaf since May 10), mountains surround him on every side, and he is in the shadow of the Golden Arches (McDonalds) where he loved to go for his morning vanilla latte and pancakes and afternoon milkshake.

     I have said that Rosebud was the perfect place not only because of everything I have already listed but because of what the word, “Rosebud” meant to Jim. Here is the rest of the story….

     We drove by this cemetery quite frequently and every time we did Jim would start whispering, “rossssssebuuuuud” numerous times. Why? It is the most famous line uttered in the movie, “Citizen Kane” which was written and produced by Orson Wells in 1941 and Jim’s all-time favorite movie as well as being the most-honored film in all of film history. When Charles Kane dies in the movie, he whispers, “rossssssebuuuuud” and no one understands the meaning or significance of the utterance. The first time I watched the movie with Jim, I never picked up on the reason and he had to rewind his old VCR tape and explain it. In flashbacks during the movie, Citizen Kane is shown having great fun sledding as a child. At the very end, they are disposing of his possessions creating a great fire when they come across his old sled and throw it on the burning heap. Only then does the observant viewer (which was not me) see that the sled is “Rosebud.” It was given to Charles Kane by his mother and represents childhood comfort, security and innocence. The assumed meaning of the whispered word is that Kane was recalling his happiest times. I believe we all have such heart-warming memories swimming in our head as life rolls to an end.

     And so shall this blog now roll to an end. There will be many more events in my life related to my years as the wife of James Nelson Fisher, Jr.—such an honor and gift from God. I do not believe any will be eventful enough to write about. Furthermore, I must move into the next volume of my life. The “Life with Jim” volume is now complete. As I understand it, Caring Bridge leaves the posts for a very long time so any of us can revisit the photos and stories I have told for some time to come.

     Words are not adequate to thank all the people who have supported Jim and me on this journey. Your kind words (in post, notes and in person), special trips to visit with him, food donations and hugs in spite of COVID have helped sustain me and lift me up. Just yesterday, a dear friend, Darrell, asked, “When did I miss Jim the most?” My quick response was, “Garbage day!”—true, witty, and nostalgic but definitely not the meaningful response anyone in the group was expecting. So many other times I miss him, but I have morphed from having those “missing him” moments and crumbling into a heap of sobbing waterworks to smiling and hearing him remind me not to forget certain trash cans, his unique laugh in the background as I lug the garbage can to the curb and see him smiling at me as I trudge back inside—often through blizzard, rain or on an icy drive. I guess that is the path of healing after the loss of a spouse—you go from crying over what you have lost to smiling and laughing about what you were lucky enough to have had. At least that appears to be my path and journey.

     I will sign off with wise words from my dear sweet momma (which I have already told so many people), “We are all going to die sooner or later. The later it gets, the sooner it is coming!”

     We shall always miss our JJ! Aloha!

Patients and caregivers love hearing from you; add a comment to show your support.
Help James Stay Connected to Family and Friends

A $30 donation to CaringBridge powers a site like James's site for one month. Will you make a gift to help ensure that this site stays online for them and for you?

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top