Jacob’s Story

Site created on November 2, 2018


Hello friends.  
This message comes to you tonight with heavy hearts.  
It all started about 2 weeks ago after the boy's 9th birthday party.  Jake started coughing and noticed that he felt a little winded upon running or playing hard.  That week at school he was struggling with his breathing when he played in gym class.  We took him to urgent care at PIP in Maple Grove and they diagnosed him with an ear infection.  They said his lungs sounded great.  
Fast forward to  this morning.  He woke up very swollen and having difficulty breathing.  Sam took him in to North Clinic where they took a chest xray .  They saw a "white suspicious mass" on his lung area.  It was large enough that it was pushing on his heart and trachea.  They immediately recommended that we go to Children's MPLS.  Upon arrival they ordered a CT scan.  
This is what we know this far...….
He has a solid mass that Is invaded his lung space.  It most likely is very fast growing. 
 He had to have a procedure tonight to drain fluid around the mass so they can get in and biopsy it tomorrow and hopefully help him breathe better.  He did this without being sedated and with the assistance of his amazing dad by his side.  My warrior men, they amaze me so much.  He is such a strong and incredible kid.  Anyone that knows Jake well, knows that even flu shots have been  a struggle for him in the past.  God is already provided so much strength for all of us.
Tomorrow they will biopsy the mass and we should know in 24 hours or so of the diagnosis.  We have been informed that they think Jake has lymphoma.  As many of you know, Jake was one of the LLS boys of the year in honor of his mom a few years ago, and has emptied his piggy bank more than once to help fund a cure.  Although we aren't sure that this is his diagnosis, we are praying that whatever it is, it is treatable.
We serve an amazing healer in the Lord Jesus Christ and have and will pray for complete healing for Jacob.  He is our whole world and we hope you will join us on this prayer journey in hope of complete healing.  Please also pray for Sam, as this journey is far too familiar in his heart, And for Ben.  He is hurting too.  
Check back for updates.  We love you all.  

Newest Update

Journal entry by Katie Rodriguez

Hey friends. 
I decided to post an update today because I’ve been asked how Warrior Jake is doing, via text and calls, several times this week. 
No news is good news. 🙌🏼🤞🏼🙏🏼 He has been super busy spending FULL DAYS at school, reconnecting with classmates, making up work and taking tests. He’s been feeling great. Minimal nausea is controlled with a patch and some meds. 
We will be at Children’s Friday for a count check and his second chemo of this round. He is scheduled for physical therapy as well.  Some of the chemo he’s taking is hard on his joints and muscles, short and potentially long term. So they need to make sure to stay on top of that. 

I’m not going to lie, watching everyone leave for spring break and seeing “beach pictures” has me jealous.  But, to everyone sharing them, know I’m dreaming of beaches and ocean water right along with you.  I hope this is a reminder to enjoy every precious moment with your healthy kiddos!  Through the chaos of life, it’s so easy to forget. It’s such a real gift and blessing that many don’t pay real attention to and take for granted. So don’t!!!😘 
Our boys have next week off for their own spring break. We will hopefully be able to get out in public at the least and take them to a few places.  We should know more after counts come back Friday. We need that magic number of 750! 

With that, we are so thankful that spring is around the corner. The sunshine feels amazing and it’s funny how much you appreciate even a patch of green grass:)  I was outside taking the garbage out the other day and heard a bird chirp. I ran in and told Sam “oh my goodness, I just heard a bird singing, it sounded like heaven”!🤣 Wow, it really has been a long winter. 🤦🏼‍♀️
 Spring football will be starting for Ben soon, as well as baseball. It will be weird not cheering for both of them this year.  We faithfully believe we will be cheering for Jake on those fields in the near future though.  We know that his stamina is not there to be playing these kind of sports right now. 

With that, 

Continued thanks to all who are continuing to follow Jakey and our family.  For all the prayers and messages and even meals that are still coming our way. We appreciate it all. 

Love 

Katie and Sam
Patients and caregivers love hearing from you; add a comment to show your support.
Can you help power Jacob 's site?

A $30 donation powers a site like Jacob's for one month. Help keep CaringBridge online for them and for you.

Show Your Support

See the Ways to Help page to get even more involved.

Personal Fundraiser
Support Links
Helpful Tasks
SVG_Icons_Back_To_Top
Top