Jake’s Story

Site created on August 29, 2018

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting. Please feel free to post your own thoughts, pics, drawings, poetry,etc. as it is my hope that this space may benefit all of us. Thank you so very much for your thoughtful words, acts and loving kindness. I am overwhelmed by the sheer vastness of love and goodwill. Osteosarcoma hasn't a chance in this race. We are truly blessed to have such wonderful family and supportive friends! There is a Go Fund Me section near the bottom but nobody is required to donate. We are grateful for your support of our  awesome son and our family during Jake's journey and continue to be overwhelmed by the people, patients, parents and vast amount of volunteers and prayer warriors we meet and feel honored to be included in the prayers and good wishes of others who all have their own journeys. Love,


Jen (Mom)

Newest Update

Journal entry by Jake Hanley

We are so very blessed to have moved back into such a caring community. A wonderful group of women knitted a giant box of hats, varying sizes colors and styles that we are able to donate to the Ronald McDonald House in Chapel Hill. We haven't yet been able to visit the room Jake sponsors but it was like going home just being there and talking with the volunteers. When we go back to UNC for Jake's next work up,  we are told we may be able to stay in that room. I uploaded a couple of pics and one is of Jake in front of a wall of photos. One of those photos is of Jake before the hair grew back. 

Jake is in a wonderful study that is following adolescents who receive high dose chemotherapeutics and following things long term such as fertility which can be greatly affected. Luckily, Jake's team had the foresight to have Jake store prior to treatment as he will be a great dad one day. A lot of people are unaware of the various long term possible effects after treatment such as heart issues,  another form of cancer, and depression for example. 

Jake is now a senior and looking at colleges. He is back in PT to strengthen that right leg/ thigh and we are trying to stream off neurontin as jake really wants to earn his pilot's license this year and gabapentin is on that no fly list.

 

Thank you so much for the support appreciated and prayers. It is wonderful to be able to give back a little. God bless

 

 

Jen

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