Autumn, I’m crying with you this morning. You do not know me but I feel like I know you all. I was a college roommate of Dawn’s and good friend with Harold through our years at MCC and Harding. I have been following and praying for you all for sometime now.
I have been a nurse and nurse leader for quite sometime. My specialty has been Emergency Nursing. It is a true blessing that you have developed a connection and friends with your nurses in Milwaukee and you will eventually there in Chicago. From the other side of the bed, I can tell you that nurses feel blessed when they too can connect and be all those things with their patients. I think that is why many of us say we feel called to the profession, because of our desire and ability to connect and serve our patients. When someone calls you a name and uses a laugh to disguise it’s intent, it is called sarcasm and is just mean. It does not have a place in health care when people are in their most vulnerable state. This nurses behavior is not a reflection on Isla but the nurses inability to handle the situation.. Your forgiveness in the moment is beneficial for you, “she was only joking” but if it continues I would encourage you to speak with someone. This is hurtful and detrimental as you transition to a whole new health system and way of life.
Thank you for your posts. Your emails and reports have been so detailed thorough that it feels like we are there hearing from the doctors and health care providers. Your prayer warrior here in Lansing, MI is grateful for you taking the time to keep me abreast as you journey this difficult path. I pray each time I read your notes. Autumn, Micheal, Isla, Sawyer I pray for your strength and fortitude. He who has brought you thus far will continue to hold you close!
It truly does matter! I can remember the names of the PTs, RNs, LPNs, etc that put up with a 15 year old dealing with paralysis nearly 50 years ago. They are truly remarkable people. I pray you make strong bonds there. Mostly for great success. Strength and peace.
Autumn,
Don’t forget that you are the medical consumer, and your rights and feelings are valid! I know you well enough to realize that you’re not being anti-social or threatening to these new nurses. I cannot fathom anyone calling Isla rotten, whether it’s a joke or not! She’s 3 years old for goodness sake! If anyone keeps this up with you, report them! Remember, if you have to go through hell...walk as if you own the place! Love you! Mommy Mueller ❤️❤️❤️
Oh, autumn! I can imagine that those are COMPLETELY NORMAL things to feel. Your whole life has been turned over. Praying for you and your family in this transition.
You’re the bravest person I’ve ever known. Please don’t ever feel bad about feeling bad. You’re carrying more than most of us will ever have to carry in our lifetime. But know that you, Michael and the kids are always in my thoughts. 💙💙💙
All those small moments really do matter! Change is hard especially when things are like they are right now. My heart truly goes out to you. Praying over all your needs! God bless you all!!
Whatever you and Isla are feeling is more than "ok". It's exactly right in the moment. This all sucks and is unimaginable. Moment by moment, that's all you can do. I'm very sorry a nurse called your precious daughter, rotten. I had to read it twice as I was in shock just reading it. I can imagine how you felt in that moment as I have had complete strangers say very mean things to my daughter when she was younger and was "acting out". She is autistic and the world gets too big sometimes. The behavior is just a way to communicate how they are feeling inside. It's just a way to let us know what is happening so we can help. Sending much love to you, Isla and your little family. My hope for you is soaring high. My prayer for you is "please help this little family get to the other side of this knowing they are loved and safe."