As for Isaiah and our family, that amazing boy of ours is still very much a walking miracle. Prior to this week, we made it almost a month between seizures--the longest seizure-free span that I can remember. What a gift. Additionally, even though his seizures still require emergency medication, he is still coming out of them (and that is very much a miracle). Also, he seems to be coming out of his seizures a little faster and a little stronger than he was in January or February. This is all very encouraging. Thank you for continuing to pray. God continues to walk with our family.
At the beginning of March, we made the trek to Fort Worth to meet with Isaiah's geneticist. A few additional tests confirmed much of what we already knew about his diagnosis. It is a very, very rare condition. Also, while it is a genetic mutation, it appears to be a new mutation in Isaiah and not something inherited from Careese and me (i.e. none of our other children have it, which is really good news.) Additionally, Isaiah does have another genetic abnormality that was inherited from me. I asked if that meant Isaiah was destined to a life of rugged good looks and intellectual prowess. Apparently, it does not. Anyhow, we didn't really learn much that we didn't already know. But, we were reminded of just how miraculous his progress has been. Bottom line: he shouldn't be alive, let alone walking, talking, learning, and progressing. Yet, here we are. Thankful.
As you might imagine, we've been under a fairly strict quarantine around here. So, Isaiah has been working on his various therapy routines at home. While the progress is still very gradual, we are still seeing progress; and, that makes us smile. Worth noting: we have a newfound appreciation for those of you out there who also have immunocompromised loved ones. Times like this are nerve-racking and full of difficult decisions. Again, let us know if we can pray for you.
Isaiah's geneticist mentioned that she was helping move along the process, which is wonderful. Other than that, we don't have any other updates yet. All this COVID-19 stuff has understandably delayed the process.
All in all, the Wood family is doing well. We're trying to make the most of our quarantine time and trying to follow the advice of Philippians 4:8. We have much to be thankful for. Thanks for joining us on this journey. Thank you for praying.
A couple other items of note:
1) I recently typed up a few thoughts on grief, suffering, and joy....specifically, what we've learned about those things through all of this. Here are those thoughts: http://www.joshwoodtx.com/grief-and-suffering/
2) I’ve talked a lot about how thankful we are for Cook Children's Hospital. I don’t know that they could have taken better care of our family this past year. In addition to working tirelessly to save our son’s life, their Child Life team provided near-constant opportunities for distraction for our other kids. They were nothing short of amazing. The video attached is one such distraction—a little movie produced by the wonderful people of Cook Children’s Child Life Zone (written and performed by our kids). Enjoy.
3) I attached a few photos of a family trip we took to San Antonio just before COVID-19 changed the world.