It’s been a stable few weeks from our standpoint. 

Isaac and I have kinda found a boring groove at home with a little variety sprinkled in there. 

We got Isaac back to the classroom almost 2 weeks ago for just a few hours a day. Our school nurse left her position at the Elementary school they have substitute nurses there now and that makes me uneasy with Isaac on oxygen… so I go to school with him for those 2 hours in case anything needs attending (I sit at a table outside the classroom and do a lot of reading, which I enjoy).  We trialed a smaller oxygen compressor that would fit into a backpack for him (a pulsed delivery of oxygen vs a continuous flow) unfortunately he did not pass and needs to stay on the continuous flow. So we cart around the “luggage” as his peers refer to it now. Isaac was nervous about being back in classroom but quickly learned how much he missed his friends and how much they missed him.  Deep down I hope this is also educating the students/staff and allowing them to support him as he navigates this heart journey ♥️. 

We also take little road trips to shake things up: dropping off pop tabs at Ronald McDonald House, haircuts, making venison sausage, Easter weekend, we headed to our camper for a day as well as other various appts. Today’s trip is to swap out the oxygen compressor as it’s giving us some trouble holding a charge. 

Isaac is doing well - he feels great and still hates the oxygen in his nose. He dislikes being tethered down when the weather has been so nice outside (he really wants to jump on the trampoline outside) so I’m sorta thankful for the cooler temps and rain so nobody is outside.  He is loving building all the Lego sets and despises reading 🤪.  He has times of good oxygenation which allows him to have some breaks from the oxygen, usually lasting just a few hours, even so it’s nice to be able to let him function with pulling a hose behind him.

Later this week we will have another echo and meet with cardio again just to make sure things are stable as we get closer to heart cath day; we are ready to get this done and get back to “normal”. 

Thankful for Isaac feeling so good otherwise and having a decent attitude about all of this (I’m eager to get back to work so I’m amazed at his “chill” composure of it all). Thanks for continuing to pray for him/us to keep him healthy for the next few weeks.