Happy 2020!! As some of you know, my daughter Georgia woke up at the end of November 2018, with severe back and shoulder pain. I  thought this was out of nowhere, until we realized it was probably brewing along time, with lots of illnesses, broken arm, fatigue, passing out, just tons of stuff. After our 1st er visit, we realized this may be more serious than we originally thought . By February 2019, she had been officially diagnosed with Amplified Musculoskeletal Pain Syndrome. By mid June 2019, we found out she had Epilepsy, by the end of June, she had been diagnosed with Cardiac Dysautonomia (POTS), and to top it all off, by mid September she was diagnosed with Ehlers Danlos Syndrome/Hypermobility Spectrum Disorder. She has been to numerous specialists, as well as Brenner Children's Hospital . They referred us to Children's Hospital of Philadelphia. Unfortunately, due to her having NC Medicaid, that was going to be impossible. We did everything possible to help her with the resources we had, until NC Medicaid decided that there was no cure, and they stopped her physical and occupational therapy. We were finally able to get regular health insurance for her, and she is headed to Children's Hospital of Philadelphia. Unfortunately, along with that, comes the financial burden. It will take a village of people to stay with her, due to my having to work, most of her stay, with could be anywhere from 3-8 weeks. We have to worry about losing one of our salaries for a  period of time, the cost of getting there, the cost of staying there, and basic needs. I have never been one to ask for help, but I have to now, I know my daughter can get better, and I have to do all I can to help her. Not knowing how long she will be there, or what she will need when she comes home, we wrote down everything we could think of, cost wise, and have come up with $5000. I am hoping it it not a whole lot more than that.