Holly’s Story

Site created on May 1, 2021



Welcome to Holly's journey, this new chapter in her life has been titled 'Hellraiser Holly's Warrior Road' because we anticipate nothing less than a warrior fight from our Hellraiser and as her fellow hellions we need to keep her steady on this road ahead! If you know her or even if you don't you will quickly learn she has a passion for all that's genuine,  she is a committed to her family and friends, her quick wit will bring you laughter, she's rather mischievous, her tenacity is contagious and don't get in her way when she makes up her mind  because her determination and relentlessness does not take to losing kindly.   

 In February 2021, Holly went to the doctors for a regular physical and left with a clean bill of health, bloodwork looked great and there was zero reason for concerns. Within six weeks of that visit Holly noticed a few lumps in her left breast, they were growing rapidly, and she knew something wasn't right.  

On April 20th, 2021, Holly received biopsy results that confirmed breast cancer. Holly's original diagnosis was HER2 (Estrogen and Progesterone negative) metastatic breast cancer but  biopsy's from an additional mass  has revealed that she has a second cancer, ER and PR positive breast cancer (HER2 negative).  An MRI on her back was returned with the all clear! After consultation with the oncologist the cancer is below her chest wall which makes it stage 4, however the cancer is confirmed to be confined to her lymph nodes and will be treated as stage 3. 

Chemo started May 13th, 2021!  

All you need to know about Hellraising Holly: 

1.   Holly loves animals. If they are breathing, she is talking, hugging or feeding them treats. 
2.   Travel is Holly's favorite past time. 
3.   Holly is a foodie but loves the dinner company as much as the food.  
4.   The beach is her happy place.
5.   Holly's favorite color is pink, in all shades.
6.   Holly loves CrossFit and half marathons, is reenergized after a good hike and finds solace out on her kayak. 
7.   Plants are life and her newfound hobby.
8.   Brody and Milo are her furbabies. Brody is 16-ish, blind, a treat monster and incredibly loved. Milo is three-ish, a rescue, obsessed with getting his hair done and a bit neurotic but his spunk and Holly’s patience make it a true love story.
9.   Barb and Holly are besties. Holly is Barb's legal guardian and they spend their Sundays eating out or staying in putting together puzzles. 
10. Why Hellraiser Holly’s Warrior Road?

As most of you know or experienced, Holly's passion is nothing less than intense and she can raise some hell when she needs to.  Whether that hellraising is used smashing goals and getting stronger or being dedicated in supporting her family and friends. Our fierce Warrior is going into the battle of her life and she needs her allies to walk this road with her, so let's support Holly as she gives cancer hell! 

Newest Update

Journal entry by Holly Lynn

Well, I did it. Kind of!

If you've been following along you would know that I said I was going to have "Lat Flap Surgery in the Fall". I had to mentally prepare and be ready to lay low for several months after having this surgery which has always been tough for me to do. I technically could have had this surgery last year at this time but after being sick and going through so many treatments and appointments I really didn't want to go through more. So I took the break from the continuous medical appts I very much deserved continuing with just my chemo medications. 

It was a couple years I lived with so much insecurity and self doubt, body dysmorphia, depression, etc. It was time I made the appointment to get back to feeling "feminine" again,  feeling like myself, to a body I deserve to be proud of after the past few years. 

appointment after appointment, scans completed(which were CLEAR! :)), preparing for FMLA/short term disability with work, I scheduled the surgery. 

I honestly didn't talk about this surgery to many because most would comment about how I am lucky because I get to miss work for that long or to "take a break", I get a "boob job", so and so had a boob job or breast cancer and got new boobs, the list goes on and on with the comments Ive heard. Someone even said how 'I was choosing to have this completed so I can't really complain about it'. There is one thing I really never do which is complain about my cancer or surgeries. I have always known how blessed I am to be alive, be able to talk, walk, and live a good life. I never take that for granted and many don't have that opportunity and I am forever grateful. However, having metastasized cancer is something I never chose and something I wish I had more options for in treatment. It was the route I had to go to survive and be here even though it meant delayed breast reconstruction and I had to live 2 years flat, uncomfortable and extremely insecure. 

In reality I wasn't getting a boob job yet, I was having an intensive surgery to be able to get one in the future. I really didn't have anyone to talk to about the surgery besides my surgeon as it is pretty uncommon for women my age to have this surgery, like my cancer journey has been, I'm an "anomaly". I joined online groups and spoke with a few ladies I was fortunate enough to meet at a metastisized breast cancer conference this past last year (which I REALLY hope I am able to afford to go again this year because it made a world of difference being surrounded with such strong women who have had similar cancer journey paths).

It's now been three weeks since the surgery. I stayed overnight in the hospital, thankfully! I had the best care and the best pain medications. You do not realize how much you use your core/back muscles. I couldn't sit up independently the first week, put my pants on or even open a water bottle. Unlike my mastectomy I was given pain medications this time which was a life savior. Even with the medications the pain was unimaginable and I questioned every life decision that first week. Week two was better, I could dress myself, sit up independently, and get one of four JP drains out! Week three I got two more drains out and can raise my arms with elbows bent to a 90 angel! I'd say things are looking up! I still haven't been able to shower due to having a drain in and its really all I want to do(Enjoy your shower/bath for me, Please!!!)! Before with my mastectomy I didn't have to worry about doing my hair since I was bald! 

Below in the picture is the section on my back where they removed muscle and skin and rotated it across to the front of my body where I had radiation. I have the after picture of back incision. The last thing I remember before surgery is laying facedown getting nerve blocks in my back to help control pain. The front has incision across the entire surface laterally and the section where they placed the back flap transfer (ill spare you the photo of that for now). During the surgery I had several adhesions that were freed from my lymph node removal. The surgery lasted approximately 7 hours. 

Most people take 6 to 8 weeks of leave to recover from this surgery. I decided to take 6 weeks since I will be having at least one more surgery this year and will need to take about 6 weeks off and technically only get 12 weeks of FMLA. This surgery is technically stage one of several stages so who knows how many more weeks ill need off but I can only hope they are in the new calendar year :) 

During the surgery I had flat expanders placed in my chest to stretch the skin. I will be stretching my skin weekly for about 10 weeks once I am healed from this surgery. I was told I'd be able to do this part in Fargo, however, they are now unable to since the plastic surgery teams my doctor once worked with no longer work there. So I will be needing to make weekly trips to minneapolis during this 10 weeks which is unfortunate and stressful but it will be okay. 

cheers to getting through these next few months full of limitations, fast healing, quick recoveries. I know it will all be worth it once its done, I just need it to be over already! 

remember when you ask someone what they having surgery on and someone says they are getting "reconstruction" don't always assume it means a "boob job". I'd do anything to get a "boob job" and not have to go through this pain physically, mentally, and financially. 

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