Journal entry by Abigail G. Tomlinson —
Well, when it rains, it pours I guess. William and I have enjoyed this past week being home, but within a few days of getting discharged, I came down with a cold. Henry shortly followed and had needed some albuterol to fight it off, but has basically been a very normal level of fussy for a sick baby or toddler besides that. The primary concern at this point is that we’ve seen the vomit coming back and we don’t know if it’s a temporary worsening due to being sick or the true return to pre-hospitalization levels that we’re witnessing. He’s gone back to waking up and vomiting, and he’s losing most or all the feed, sometimes up to two hours after his feed. Honestly, it’s pretty exhausting and discouraging to never know whether we’re seeing true improvement or temporary relief when we want so badly for every attempt to stick, and of course, there’s now the added pressure of wondering if we’ll end up back inpatient for more dehydration. Only time will tell at this point.
On a more positive note, we’ve been very much enjoying the warm weather and sunshine (as you can see from the pictures) 😊 Henry and I are both on the mend now from our cold thankfully, and praying we see Henry’s vomiting go back to low volume once a day or less as he continues to recover. He’s got quite a few appointments next week, so we will likely have another update next Saturday if not before. Love to you all ❤️ thank you for your ever present support and love.