Henry | CaringBridge

Henry’s Story
After some persistent unexplained vomiting Abby and Randy decided to bring Henry directly to Helen DeVos Children's Hospital. Shortly after being there he was diagnosed with a brain tumor. After having surgery and many long dreadful days we found out it is AT/RT(Atypical teratoid/rhabdoid tumor) an aggressive and rare form of brain cancer. Right now is through his first round of chemo, 7 or so more to go along with some radiation treatments. He has been doing very well and is such a trooper with all that has been brought his way.. with all the struggle he still remains happy most of the day and still finds laughter. There was a very good portion removed in the surgery, although we don't know what his tumor is going to do after these treatments but we are hoping for the best results possible for our little Henry.

Newest Update

Journal entry by Abby Brown

So far the weekend has been pretty good. Not much to update.

Henry did great on Friday with his anesthesia, no problems. 

Yesterday, he went with "Nana". Stayed with her for the night. Randy and I had a wedding to go to, unfortunately Randy wasn't feeling great so he stayed back at home. 
From what I was told he did really well. Ate pretty good. Slept through the night. 
This morning he didn't eat the best, but still was super happy and did great for Nana. 
Randy and I went to pick him up then cruised in the Impala wagon out to Wyatt's 2nd birthday party. 
The car was a hit with the kiddos! Had such a fun time with everyone. 

Got back home and then Face timed with Auntie Christina, Uncle Jeff, cousin Sophia, and cousin Greyson!

Plan this week is to: Change dressing tomorrow, go in for more testing on Wednesday, possibly carve pumpkins on Friday, then Apple orchard on Sunday!!
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Thoughts & Well Wishes

Cindy Culver | Jun 21, 2018
Pops and Mimi are thinking about you every minute of our day....you are our world and we love to the moon and back and infinity and beyond. Your in the best care with a great surgical staff and the BEST mommy and daddy in the world. Our love goes out to the Brown family 💖💖
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sharon sherwood | Jun 20, 2018
Henry...Your are in our prayers everyday. God has you in his arms and holding you close. He will get you through this. You have a bright life ahead of you. We are also praying for your family as they deal with this in there heart. Keep them strong. Let them know there are a lot of people looking out for them.
Prayers.
Thank you for the updates.
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