Heather’s Story

Site created on June 25, 2018

     During the last few weeks as a Senior at Stoneman Douglas, Heather  underwent surgery to remove a large tumor. It is a rare cancer - Small Cell Carcinoma Ovarian Cancer, Hypercalcemic Type (SCCOCHT). She started chemotherapy on June 5, 2018. The treatment plan is three times a week every three weeks - for six cycles.  The cancer has metastasized.  The genetic results show there  is a mutation of the SMARCA4 gene and the molecular study indicates there are  other therapies in addition to her current treatment plan that can be of potential benefit. We are looking into clinical trials. 
      Heather is strong, determined and has a great sense of humor. This situation arose just as she was finishing up high school and figuring out which university to attend.  She is planning to attend University of Florida and is deferring until Summer 2019. John Hopkins gave the definitive diagnosis of which ovarian cancer we are dealing with. Heather joked that her cells managed to get into John Hopkins even though she didn't! 
     Shout out to Ben for setting up this site for us and shout out to Zachary for the show of solidarity with his shaved head!! We really appreciate your support, words of hope and encouragement. Thank you for visiting.  

Newest Update

October 11, 2019

Journal entry by Elizabeth Geddes —

Dear Friends,

Maren from the Small Cell Ovarian cancer Foundation has been working on a video for a while now. It's finished and on their website, you tube, facebook etc... Please watch and share. (Heather's photo is near the start).

https://www.smallcellovarian.org/

https://www.youtube.com/watch?v=2xpensC313g

Hugs

Elizabeth
Read More of the journal titled "October 11, 2019"
Patients and caregivers love hearing from you; add a comment to show your support.
Help Heather Stay Connected to Family and Friends

A $25 donation powers a page like Heather's for two weeks.

If you donate by April 17, your gift will doubled, up to $30,000, thanks to a matching gift by former CaringBridge board members.

Leave a comment of support for Heather

Did you know? A quick comment, no matter the situation (positive or negative), can boost morale by 28.2%.

Comments Hide comments

Read More Journal Entries

Show Your Support

See the Ways to Help page to get even more involved.

Personal Fundraiser
Support Links
Helpful Requests
Go to Ways to Help
SVG_Icons_Back_To_Top
Top