Journal entry by Cassandra Caines —
Hello friends + family,
We have been enjoying home! Sienna goes to story time at the children’s library on Friday when she can, which has been great for her as she hasn’t really had many opportunities to socialize around other children. She will also begin a music class at the end of the month😊 We have been going on walks, going to the playground and just enjoying being home (on top of all her many therapies and doctors appointments).
Sienna had a follow up cardiology appointment yesterday since being discharged and her echocardiogram looks good! No changes, the valve is still functioning well and all looks great 🙏🏽 She will continue to have frequent cardiology appointments and echo’s the next several weeks to ensure that no clots are beginning to form since she transitioned to a different kind of blood thinner injection ( lovenox) now on a prophylactic dose.
We can’t believe our girl is about to turn 22 months!