Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.  We are hoping this will be an easier way to keep everyone knowing what is going on.  We are very tired.  We need rest so we can be our best and strongest for each other and for Hayden.  Our journey has already been so exhausting.  We are so thankful for all the kind thoughts, visitors and gestures!  We have some awesome people looking out for us and our sweet little boy.  There is nothing worse than seeing your child completely helpless like this.  We know people want to help.  Although we have a very hard time with letting people help, we do need it in many forms or ways.  Every day is a new adventure and we still don’t know where we go or how we get there.  Please be patient with us as Hayden’s parents as we work through everything together.