Journal

Journal entry by Tiffany Sage

   Harlan got the Optune two weeks ago. No noticable changes in his condition but we are feeling positive about it giving him more time. He looks pretty interesting with his new headgear. =]    If you want to know more about the Optune, check it out at https://www.optune.com/ />   We had a fun birthday party for Harlan at our local bar - The Dock. You may have seen my facebook post about it. Good times! Here are a few pictures in case you missed them.
   We have pretty much been home since then avoiding the coronavirus like so many in these crazy times. Stay safe everyone!
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Journal entry by Tiffany Sage

We went to Omaha Nebraska for a second opinion Monday. The neurosurgeon told us he wouldn't suggest a different treatment than Harlan is currently on. He said the standard of care has the best results. We asked him about the optune and he thought it was a good idea and knew that another patient of his had recently been set up with the optune there. They contacted the oncologist there to see if Harlan would be a candidate for optune. They called us today and set up an appt for Harlan for 9am on March 2nd in Omaha. 

Journal entry by Tiffany Sage

There are no words to express my appreciation to all the people who put on the benefit for Harlan Saturday nigh . Misty - you're amazing! And yes - I know I sound like Capt obvious right now. LeRoy - you too are amazing but maybe not so many know that and the beautiful lady who walks beside you deserves a medal. Thank you all CCRs that worked so hard and all the donors (I can't name everyone so I dont want to offend anyone by naming names) - your generosity touches our heart in an overwhelming way. Thank you to everyone who came and supported us!!!! What a wonderful event! Thank you, thank you to everyone who has supported us along the way. It's incredible how many people care about us. Thank you.

Journal entry by Tiffany Sage

Sorry I am terrible about posting updates. I thought I would get caught up with a lot of things and do better here too. I'm going to keep trying. Thanks for your continued patience.
  Yesterday we finished shaving Harlan's hair. He's a pretty handsome bald guy! Of course I am a bit biased but you do have to agree - because I said so. Lol
  So Harlan got an MRI today. The dr said the tumor looks bigger but it could be just swelling from the radiation or it could have grown. He said Harlans tumor is what they call a butterfly GBM - it's on both sides of the brain - and they typically are the worst type - fastest growing. They will do another MRI after his next round of chemo (5 days of chemo starting in 2 weeks with 23 days off following) and see if it is actual growth. We are looking into the optune and possible trials.

Journal entry by Tiffany Sage

Harlan's hair started falling out this week. Well - it was noticeable this week... He wasn't ready to go full on Kojak but I gave him a quick buzz last night.
Harlan says - so much for my old guy sexy hair look. He still looks great! I might be a little biased.... =]

Journal entry by Tiffany Sage

I want to send out a Big Thank-You to everyone who has supported Harlan, me and our family with kind words through  positive thoughts and prayers, calls, texts and IMs, cards and donations. Your love, kindness and generosity touches our hearts and helps us through every single day.
  It was great to have Christmas with most of our kids on Saturday. They brought great food and we had such a good time. Harlan's parents and brothers also came to visit and were here a few days. It was wonderful to have them here and spend some time.
  Harlan has been getting radiation treatment everyday at 11:30 and he takes chemo orally every night. Today is the end of 2 week . He has been doing very well. He has adjusted to the radiation mask and has had almost no reaction to the chemo. He has another week before a break. Harlan is stronger every day and gets around the house without his walker pretty often. He doesnt have physical therapy right now but does some on his own.
  HUGE THANKS to our good friends and Andy and Mel and Andy's cousin for their generosity - They gave Harlan a beautiful female black lab pup. She is not only great physical therapy but also incredible emotional support he needed. He hasn't stopped smiling since she got here! He really needed her.

Journal entry by Tiffany Sage

Harlan started radiation and chemo yesterday and he seems to tolerate it well this far. Emotionally it's a roller coaster but he's in good spirits this evening. Keep him in your thoughts and prayers. I know you already do but i want you to know - it makes a difference. We so appreciate your emotional support!

Journal entry by Tiffany Sage

Sorry for the lack of updates. Harlan has been doing so well and we have been busy looking at treatment options and daily therapy as well as trying to get a little going on the business side. We have some pretty great news. Harlan goes home today. It's going to be good to be home after 3 weeks. Chemo and radiation starts Monday and so that will be what he does for the next 3 weeks. 

Journal entry by Tiffany Sage

It was Harlan's first day off since he came to the Acute Rehab Unit. It was very nice. We went for a couple walks and had some visitors and some time to relax a little. Back to work tomorrow but only half the usual. Three half-hour-sessions instead of three hour-sessions. Still looking at January 10th as a discharge date. A big heartfelt thank you to everyone for your prayers and well wishes. 

Journal entry by Tiffany Sage

It's been a good day. Harlan is working hard toward going home. I'm amazed constantly by his progress. They have a tentative discharge date of 1-10. Today I was approved to transfer him so I can now help him get up and we can go for a walk. It feels like a big (and exciting) step toward going home. We also have sent Harlan's records to UC Health and Swedish Hospital in Denver to see if they have other treatment options. 
Harlan’s Story

Site created on December 24, 2019

On Saturday evening, December 22, 2019, Tiffany brought Harlan to Regional West Hospital in Scottsbluff, NE because they had been noticing he was having troubles with his balance and some slurring speech, and they were continuing to get worse. After a long night full of tests, they were informed that Harlan has a tumor deep in his brain. 
On Sunday morning, the neurosurgeon determined that the tumor was inoperable and decided that the next step to would be to do a biopsy of the tumor to determine what it is and what caused it. 
The biopsy was preformed on the evening of December 23rd and went great! They got two really great samples and sent them to two separate labs. Currently, we are waiting for the results. They should be in soon after the first of the year. 
His wonderful wife Tiffany and all of his children and grand children have been gathered around his bed taking great care of him and making him laugh all along the way. Thank you very much for all of your thoughts and prayers. We will continue to keep everyone updated using the Caring Bridge website at: https://www.caringbridge.org/visit/harlan.sage/journal

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