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Hampton’s Story

Site created on October 1, 2018

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Hampton is a sweet, loving, rambunctious 4 year old boy who was diagnosed with Clear Cell Sarcoma of the Kidney (CCSK), a rare malignant tumor of the kidney, on September 27, 2018. Hampton's journey started on September 18th with no symptoms other than a fever, which is not unusual for an active little boy who loves to play with friends and attends preschool. A routine doctor's visit that day turned into a need for further tests the following day. On September 19th, testing revealed a mass in the abdomen , with subsequent tests revealing a diagnosis of a tumor confined to the kidney believed to be a Wilm's Tumor. Multiple pathology tests later, one of the leading researchers in pediatric renal tumors returned the pathology results with a diagnosis of Clear Cell Sarcoma of the Kidney, not Wilm's Tumor. MRI and bone scans reveal that the tumor is encapsulated and contained at the original site involving only one kidney. With this diagnosis and the need for aggressive treatment, Hampton began chemotherapy on October 1, 2018. which will occur before and after surgery for tumor removal.

Hampton's story is teaching us daily about God's unfailing love even in the midst of heartbreak. God is in control and we give Him our boy. We ask that people remember our family in prayer.

"Be strong and courageous!" Joshua 1:9

#HamptonStrong

Newest Update

Journal entry by Michael Schulz — Jun 18, 2019

Tuesday and Wednesday last week Hampton was scanned head to toe and received a clean bill of health.

We are so thankful to be finished with these last 9 months. He got his port removed yesterday and is by all accounts (good and bad) is back to normal. It’ll take a few months for his hair to start growing in but he is on the road to recovery.

We ring the bell a Prisma Hospital Oncology clinic next Wednesday at 10:00.

We are grateful for all the support we’ve received. We have a lot of trips planned this summer and are looking forward to all that’s ahead.

Michael

Read More of the journal titled "All Clear!"

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