Griffin’s Story

Site created on June 20, 2021

The gofundme link has been hard to see and I forgot to include it in the journal entry below so posting here. It's also under the Ways to Help tab. Thanks friends for alerting me. :) .  Please note this is the one specifically for Griffin. If you donate to Caring Bridge, it goes to Caring Bridge (which is a great organization and worthy of support).  Below is more info on his condition, also included in first journal entry.


https://gofund.me/02e0697e



Hi friends. If you are on this site it’s because you know us and care for us and for that I want to say thank you. The concern and love and support of family and friends is vital and sustaining in Griffin’s journey and we want you to know we feel so humbled and amazed by our community. I’m starting this site to have a place to answer questions many of you have asked and to give regular updates on Griff’s health.

So a couple of quick question/answers first. And then for those of you who want more personal details, you can read my journal entry below.

1.       What does Griffin have? CIRS

2.       What is CIRS? “Chronic Inflammatory Response Syndrome is a progressive, multi-system, multi-symptom illness characterized by exposure to biotoxins. The ongoing inflammation can affect virtually any organ system of the body and if left untreated becomes debilitating.”

3.       How sick is Griffin? Test results show his brain and internal organs “devastated” and in danger. This disease is trying to kill him.

4.       Can he be healed? His Dr. is confident that with aggressive treatment and following a strict protocol that his body can be cleared of toxicity and his symptoms mostly cleared and able to be managed. She is unsure if damage already done can be reversed.

For those who want more info, please continue reading the blog posts below. I apologize in advance - I am still figuring this website out and so the first post begins with the information I listed above ☺️.

Newest Update

Journal entry by paula keels

If you haven't already heard, Griffin is getting married! The "bubble boy" who can't step outside his house in Texas without getting sick has met someone, and we LOVE her. Lizzie and Griffin met online, fell in love and are super excited to start their lives together. They are also super aware of the challenges they face with Griffin's health. There is very little traditional about their courtship, which is fitting as there will probably be very little tradtitional about their lives. They face lots of challenges and hurdles most newly starting out couples don't face. They are equipped with a strong faith and trust in God, incredible emotional intelligence, the love and support of family and friends, and the wisdom of Griffin's medical team.
 
Their plan is to purchase a mold safe RV as soon as they can financially manage (there are two recommended brands but it will take a lot of research and some testing to find a safe one) and truck to pull it so they have the flexibility to try out different locations to see how Griffin does in them. Griffin's health is still a challenge but we are seeing slow improvements. It's imperative, however, that he get out of central Texas. 

Griff has been able to work a small job but is searching for more reliable remote work. If you're a praying person, please ask God to provide what he needs job wise. If you know of anything, let us know!

You're invited to join us virtually for the wedding December 2 at 5 pm. It is a small, low budget home based wedding but it will be lovely and they will be celebrated! The zoom link will be posted on their website an hour prior to the ceremony.

Check out their website for a few cute pics and to read some of their story. As always, thank you for praying and caring for Griffin on this very hard, too long health journey. He is still in the thick of it but we're excited to share some good news!
Paula

https://www.theknot.com/us/elizabeth-kricke-and-griffin-keels-dec-2023 
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