We just wanted to update everyone on how Graham is doing. Hopefully these posts will become few and far between.  Good news! There are really no updates since he is rocking it being a "normal" baby so far!  The only real update is that he started PT and is doing everything he should be doing at his age like a "normal" baby.  He still has spina bifida and always will, but so far it is not causing any major issues for him.  This could change any day, but his percentage of anything major occurring are very low.  They say if he can make it to 3 years old, his chance of ever developing hydrocephalus decrease to basically nothing, and he could possibly go his entire life without it.  We ask that you pray with us for this outcome. That would be amazing for him to avoid ever having to undergo shunt placement.  A shunt is what would drain the excess CSF fluid off his brain, which is what hydrocephalus is.  As far as bowel and bladder issues, as of now we are not having to use a catheter on him.  Realistically at some point, he will have to start using a catheter, but wouldn't that be a miracle if he didn't (like I said that is not reality, but we still pray daily about it).  If all he ends up having to deal with is making sure his bladder is emptied properly, then that is nothing compared to all he could have had to worry about health wise. We will cross that bridge when we have to, but hoping it is not until potty training age! Almost forgot to share that he did see ortho back at the beginning of July to repeat hip imaging.  At first they weren't sure if his right hip was sitting properly in the socket due to a slightly abnormal hip ultrasound right after birth.  So they gave him some time to grow a little bit, and we repeated the imaging July 6th (his original birthday before we received his diagnosis).  Let's just say we were given very encouraging news that day.  His ortho doctor said his hips are exactly where they are supposed to be and functioning like normal, his spine looks great, and his legs and movement are fantastic.  With that being said, there is a great possibility he may be able to walk on his own without any devices!!! We will still have to work extra hard at therapy, but knowing that things may not be as hard for him makes this mama cry tears of joy.  I don't think I will ever be able to wrap my head around how amazingly perfect Graham is and how easy we have had it.  Prayer is powerful and it works people!  What doctors can do is unbelievable, and God gave them those amazing brains and skills.  

Now for my therapy session 😂: Our amazing little miracle baby would like to see the world and experience everything his siblings have been able to. With that being said, COVID is definitely getting in the way.  We understand that people are opposed to social distancing and wearing masks. I am a former nurse (OR nurse who wore a mask for hours on end 5 days a week), who has lots of nurse and doctor friends and former classmates that are not lying about what they see and experience daily.  To our family it is not worth the risk to see how we will react to getting COVID. Baby Graham would like to meet all of his family and be held by everyone, but we just can't take the chance of us getting COVID and having to separate.  I am Graham's food source and let's be real - Knight might lose his mind if he had to be a single parent again ha ha! To all my fellow healthcare and essential workers, no matter what your title is, our family appreciates and loves you and wants to thank you for everything you do!