Thank you for praying on Thursday and over the weekend.
Katie and Grace left for their appointment at 8:30 am and things started off well. Grace sat by herself as the nurse took initial blood samples and checked her vitals. She wanted to show her bravery and sailed through the first part of the exam. They gave her an IV of Vincristine but as she was preparing for her IT, she began to get quite tired. They checked her glucose level and her blood sugar was at 48! They quickly got it up to 147 with a dose of sugar water through her port but there is reason to believe the 6MP might be affecting her blood sugar. She has been lethargic before, but this was a bit more drastic than usual. We will be seeing an Endocrinologist soon to figure out what might be causing the issue.
Once she was stable they administered the spinal tap and she recovered well. Her ANC was at 1500 which is a perfect score. We are thankful! However, since Thursday she has been on very heavy doses of steroids and will continue until tomorrow. Unfortunately, each day gets progressively harder for her and zaps her energy level. Tonight, she asked to go to bed by 7:30 pm which is quite unusual for her. I snapped a picture of her this afternoon (see below) to give you a sense of how the medication is affecting her mood. It's hard to get her to smile. Tomorrow will be the toughest day.
The half life of the medication is every 48 hours so by Thursday she will feeling a bit better, and on Saturday we hope she will be back to herself. We leave on Sunday for a week of vacation. Katie and I have been reflecting on God's grace these past few weeks. There are so many points along the way that could have ended much differently for us and for Grace. We have been spared any COVID-19 infections, the other girls have had a fantastic year of personal health, and my new role with Groundswell has allowed us the flexibility we have needed during this critical time. We have every reason to be thankful.
Thanks again for praying!
Jon and Katie
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