George’s Story

Site created on September 14, 2023

On July 27th, 2023, my life took an unexpected turn when I underwent an emergency surgery to remove a grade 2 ependymoma tumor that was within my spinal cord at the T-4 level. Until a week before this surgery, I had been unaware to the presence of the tumor. The signs were there, but I had been treating them as isolated issues – pain and weakness in my legs, struggling with balance, seeing a decline in my mobility, and experiencing other unsettling changes in my body. My journey to find answers had led me through physical therapy, supplements, personal training, acupuncture, and even some more unconventional therapies. I had even quit drinking alcohol for a couple of months, as it was making the pain worse.

This summer, during my visits to Vermont, I connected with a new physical therapist in Burlington. After just one session, the new therapist sensed that the root of my problems might be within my nervous system. It took a fresh pair of eyes to figure out what had eluded me for so long.

Without hesitation, I booked a flight to Vail, where I did a series of brain and spine MRI scans at the Steadman clinic. These tests found a sizable tumor deeply embedded within my spinal cord at the T-4 level. Fortunately, one of the specialists at Steadman connected me with a surgeon in Atlanta who is one of the only surgeons with experience in removing such rare tumors.

Within 2 weeks of that critical physical therapy appointment, we made the decision to proceed with immediate surgery. Leaving the tumor untouched would have resulted in paralysis within a few months. Surgery was the best chance for a potential recovery.

Post-surgery, I grappled with incomplete paralysis, with sensation absent from my left leg and limited in my right. Everything below my nipples remained unresponsive. The term 'incomplete' offers hope, indicating that gradual recovery over the next year or two is possible. I spent ten days in the ICU before transitioning to a spinal cord injury rehabilitation facility.

I'll be giving updates on this site. Thanks for checking in!

Much love,

-George

Newest Update

Journal entry by Merrill Wing

Hello!

 

It has been 7.5 months since my surgery. I’m continuing intense physical therapy at Craig Hospital in Denver. My girlfriend Jamie and I have a year lease on an apartment here. And I plan on doing PT here for at least another 6 months, or until the end of our lease. The window for healing tends to be around 18 months, but it can take less or more time.

 

There is slight progress week over week. I continue to get more sensation below my level of surgery. The level of my injury is a T-4, or everything below the nipple. Which doesn’t affect my arms or upper body. When I started this process, I had a little sensation in my right leg, but everything else was numb to the touch. At this point, I can feel hard pressure in every part of my body! I do have very limited sensation to temperature. And I can’t feel light touch in my left leg or lower back. Every spinal cord injury is different. Sensation and movement do not necessarily correlate.

 

As I wrote in a previous update, all the muscle groups in my legs and abs have at least a flicker of movement. Most days are spent in simulating walking, either through electronic stimulation, robotic assistance, or in a pool. I’m also practicing things like sit to stand, ab strengthening exercises, and targeting smaller muscle groups.

 

As far as physical therapy goes, it can be hard to feel the progress. I did check in with my physical therapist last week, and she reaffirmed that every muscle group in my legs is at least firing. And the goal now is to make them stronger. At this point, the obsession with making my legs stronger has taken over my life. Some days I am happy with how I’m doing in PT. Other days can be tough. And it can be scary to watch the weeks pass by, and not being where I want to be – especially when nothing is guaranteed. This has been a masterclass in patience and persistence. I’m going to keep giving it 100% and manifesting a future where I am walking again.

 

I have been able to find joy throughout the process. My girlfriend Jamie, and my friends and family have uplifted me, and been a constant source of light in my life. I’ve also gotten really into sit- skiing. Most folks need to wait a year after their injury, but since mine was a tumor, I was able to go right away. I’ve gone 10 times now. And it’s been a blessing to get back into the mountains. I’m also enjoying many pursuits that I enjoyed previously. Jamie and I also have a puppy named Ellie that has been an absolute bundle of love in our lives!

 

I’ll keep doing updates on this site. As well as continuing to share more on social media. While I tend to deal with pain privately, at this point it feels good to share more. Thanks for checking in and much love!

 

-George

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