Gary’s Story

Site created on October 2, 2019

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     I went to the doctor on June 21st because my shoulder was causing me pain.  A referral was made to an orthopedic surgeon to get checked out as Dr. saw some  arthritis and possibly a bone spur on an Xray they took. The doctor then called me after hours and told me the radiologist had spotted some  lesions when reading the Xray. The next step was an MRI which confirmed there was a lesion in the bone.  I was then  sent for a biopsy on that and referred to an oncologist.  Next step was a PET scan.  On July 17th at a consultation with my oncologist, I was told I had Multiple Myeloma - a cancer that travels through the blood and deposits in the bones. They found spots on my shoulder, some vertebrae, ribs, hip and femur.  (the reason it is called Multiple)  On July 23rd I started radiation on my shoulder and vertebrae, the areas most affected.  On July 26th oral chemo along with a weekly injection was started.  And so the journey  began...   I have faith that God put me on this journey for my greater good and have put it in his hands. I have complete trust in his will for me.

Newest Update

Journal entry by Lynn Nelson

I apologize for it being so long since my last update, although there was not a lot to report. Since I have been home I have not had any testing or blood work done, so even I was anxious to see how things went. All I could go by was how I was feeling - and each day things seemed to get a little better. I started up physical therapy on my shoulder again in January. I go 3 times a week and I have come a long way as far as moving and lifting with my right arm. I had my follow up visit at the Mayo Clinic last week. The first day I saw the orthopedic doctor and he said everything looked pretty good with my shoulder and that I would not need any surgery at this point as it was healing nicely. The next day it was to the lab to have blood drawn to check my counts and then in for a bone marrow biopsy. That afternoon I met with my oncologist for updates and found out that my blood counts looked really good and my immune system is up to about 70%. He seemed pleased with that. I found out I will have to be on a "maintenance chemo" for the next 2 years. It is the same oral chemo pill I started out with, only a lower dose and I would not need to get the injections or other drugs I was taking with it before the transplant. He would not know the results from the biopsy until this week, so I would have to wait for that. While at the Mayo, Lynn and I met up with another couple that was at the transplant house the same time that I was and got to catch up with how things were going at the house and with them. (He was just released a week earlier, so they had not been home too long). It was a nice visit and so great to see them! We got home Wednesday night and on Thursday afternoon it was over to Sioux Falls to see my oncologist there. He is the one who would be prescribing the chemo and other meds I need and tracking my progress here at home. They usually don't do the appointments so close to one another, but I was hoping to be back to work and didn't want to have to take time off right away, and they had a cancellation so I got in. As it turns out I am glad I got it all done right away because with this Covid-19 stuff going on I am trying to stay somewhat isolated. So yesterday I got the results from the biopsy and they found no myeloma cells in the marrow. Yeah! It was great news. The doctor said I will always have the myeloma but by doing the "maintenance chemo" we will keep them at bay for as long as we can. I will have to go for my next checkup at Mayo in 3 months, so until then I am hoping everything continues to improve. I have seen first hand what the power of prayer can do, so I would like to thank every one of you for thinking of me and for those wonderful prayers. Lets keep them coming for all who are impacted by the coronavirus - those who've lost their lives and their families, those that have tested positive for it, those caring for them all, and also to those who are affected and struggling in any way because of it.  Our Father who art in heaven... Thy will be done.
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