Gary’s Story

Site created on October 10, 2022

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Grace LaPaille

Hello friends.  Many people have reached out to ask where to send a donation in honor of Gary. We had a wonderful experience with Team Gleason, the foundation founded by Steve Gleason, the former football player for the New Orleans Saints. The foundation does a lot of good for people afflicted with ALS and also was the impetus for a Summit in 2014 that I believe is what this disease needs if a cure is ever going to be a reality. The result of that Team Gleason Summit was "what is now recognized as the single largest coordinated and collaborative ALS research project in the world, Answer ALS. Nearly 2 dozen institutions, 1,000 patients, and 20 trillion data points are key to the project that will define the unknown pathways that will lead to treatments or finally a cure."

They provide assistive technology  such as enhancements to power wheelchairs that are not covered by insurance and the EyeGaze computers, also not covered by insurance, so those who can no longer speak can communicate.  No income qualification, no lengthy forms to fill out--they just do it when you ask.  The devices literally arrived at our home. I am certain this model is successful because  they know people will pay it forward.  So that is what we are doing now.  If you are interested in making a donation in honor of Gary, the information is below.  Thank you very much; your donations will be put to good use. 

Warm regards to all,
Chris LaPaille

Make Checks Payable To:
Team Gleason Foundation
PO BOX 24493
New Orleans, LA 70184

https://teamgleason.app.neoncrm.com/np/clients/teamgleason/donation.jsp?campaign=384&&test=true

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