Erwin’s Story

Site created on April 19, 2018

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Erwin Barron

I haven't had an entry here in quite some time because I've been doing so well. 

Today, I got really good news. I have been struggling to get all of my nutrition by mouth and not use the feeding tube.  I'm still using a lot of the formula I used to put in the tube, but I'm drinking it. Today marked three weeks of not using the tube and maintaining my weight.  So, the good news - the damn tube is coming out!!!!!  Probably, tomorrow or Friday, I will have it removed after 25 weeks! It will be such a relief!  No more covering it for showers and having leakage accidents. And most important, I will feel normal again.

In other areas, I continue to get healthy. My energy and enthusiasm have largely returned. When I first started back to work, I would have to take a nap about noon because I was so tired. Now, I work until 5pm every day and come home with energy.  On Saturday, Coy and I hiked more than a mile up to a high ridge in the hills above Palo Alto. It was beautiful and invigorating.  I need to build muscle tone, but I'm getting there.

I still cannot swallow solid food very well, and spices and alcohol burn like hell (sadly).  But I have an appetite!  I enjoy the taste of what I'm eating.  And I can even go out to dinner if they serve soup.  Coy had a birthday party for me last week where everyone brought soft foods.  It was a lot of fun, and I ate some interesting things! I can eat more things every week. So again, I'm feeling normal.

No more cancer!!!
And finally, recovery from the horrible cancer treatment!!!
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