Journal entry by Emmy D'Antonio —
Aresenic Trioxide round 1 of 4 DONE! The first week was very rough, but the rest were tolerable. I was just very fatigued with some headaches, joint pain and skin irritation throughout, but overall I cannot complain. I intend on capitalizing on the month off to regain some muscular strength and drop some lbs.
I will be taking the ATRA orally for 2 weeks at a time with a 2 week break in between (at the start of each arsenic round and at the start of each non-aresenic month). ATRA or all-trans retinoic acid, is used to speed up cell turnover process, improving blood counts and decrease number of leukemia cells. It also speeds up your skin turnover process. It's the same anti-aging product us ladies typically love, but in a much more potent dose. My lips and nose suffer the most as they peel, but the dark spots on my face are also fading. However, I intend on basking in the sun soon, so they'll likely return as quickly as they left. I learned this week that the cost of this drug is well over $5K -- insanity. I'd definitely stick with the over-the-counter if you can.
And many of my eyelashes fell out- no idea why??
I was tested for Covid this month due to a cold, but the result was negative. We've all remained healthy so far. I'm travel planning in hopes that things will improve this year. I didn't like the idea of a new vaccine at first, but now that I've been educated on it, I will get it if I'm offered. I'm no longer considered immune comprised though, as my bloodwork is actually better than most now! I will likely be offered it in round 2 of Ohio's vaccination rollout, but I'm not sure yet.
Emmy
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Done! 1/8/21Using betadine and alcholo to clean PICC line instead of ...Patients and caregivers love hearing from you; add a comment to show your support.Help Emmy Stay Connected to Family and Friends
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