Emmy’s Story

Site created on October 21, 2020

On Sunday morning, Emmy experienced a very bad headache with extreme dizziness and nausea and decided to head to urgent care. Although she was really just verifying that she didn't contract COVID-19 and could still go on her weekend getaway for Rachel's 40th, she ended up being tranferred to OSU's James Cancer Hospital  by the end of the day with a diagnosis of Acute Leukemia.

She was further diagnosed yesterday with Acute promyelocytic leukemia (APL), which is an aggressive type of acute myeloid leukemia in which there are too many immature blood-forming cells in the blood and bone marrow. This build up of promyelocytes leads to a shortage of normal white and red blood cells and platelets in the body. Because she presented with basically no immune system, she also picked up a staph infection in her blood.  This aggressive, but treatable form of leukemia has wrecked havoc on her body these past few days.  

She is expected to complete the induction phase of her treatment at the James as an inpatient for another 4 weeks, and then hopefully move into Consolidation phase for the next 6-8 month on an outpatient basis.

She has so many friends and family that want to keep updated on her progress so we've decided to create this site for those that want to follow her in her long journey to good health. 

Newest Update

Journal entry by Emmy D'Antonio

Aresenic Trioxide round 1 of 4 DONE! The first week was very rough, but the rest were tolerable. I was just very fatigued with some headaches, joint pain and skin irritation throughout, but overall I cannot complain.  I intend on capitalizing on the month off to regain some muscular strength and drop some lbs.



I will be taking the ATRA orally for 2 weeks at a time with a 2 week break in between (at the start of each arsenic round and at the start of each non-aresenic month).  ATRA or all-trans retinoic acid, is used to speed up cell turnover process, improving blood counts and decrease number of leukemia cells. It also speeds up your skin turnover process. It's the same anti-aging product us ladies typically love, but in a much more potent dose.  My lips and nose suffer the most as they peel, but the dark spots on my face are also fading. However, I intend on basking in the sun soon, so they'll likely return as quickly as they left. I learned this week that the cost of this drug is well over $5K -- insanity. I'd definitely stick with the over-the-counter if you can. 



And many of my eyelashes fell out- no idea why?? 



I was tested for Covid this month due to a cold, but the result was negative. We've all remained healthy so far. I'm travel planning in hopes that things will improve this year.   I didn't like the idea of a new vaccine at first, but now that I've been educated on it, I will get it if I'm offered. I'm no longer considered immune comprised though, as my bloodwork is actually better than most now! I will likely be offered it in round 2 of Ohio's vaccination rollout, but I'm not sure yet.



Emmy

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