Emilie’s Story

Site created on November 24, 2018

Welcome to my  CaringBridge website. I am using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Emilie Pagel

Hi friends,

Long time no update.... :)

Today was my last follow up appointment with Infectious Disease. Since my last update, there have been some changes. Right before Christmas, I had a follow-up appointment with Infectious Disease. The day before this appointment I had my routine weekly blood work and PICC-line dressing change with my nurse Toni. She would come to my work and hang out with me to do this for about 15 minutes every week since I came home from the hospital. She and I would chat medical things and animal rescue things. Turned out that day was my last day seeing her.

Within an hour after seeing Toni I got a call from HealthPartners asking if I felt sick and letting me know that my WBC (white blood cell count) was down. There is also a specific kind of WBC called neutrophils. These little neutrophils are important in fighting off infections from bacteria. Well, my count was ZERO. Basically, I had no immune system keeping me from getting sick/fighting the infection I already had. So this was a problem. The nurse informed me to stay away from sick people and just be extra cautious. She informed me that she would speak with a doctor and they would call me back if need be. They called me back later that evening and informed me that I needed to skip doing my antibiotic that day if I hadn't already infused it. They also told me since I already had an appointment the next day that they would talk to me more about it then but they let me know that I was probably going to stop with the IV antibiotic infusions and switch to oral antibiotics. I found out at my appointment the antibiotic was causing the WBC to drop and keeping my body from making neutrophils. So I had to start taking oral antibiotics instead. They instructed me to start taking Cephalexin 500mg three times a day. So with switching to oral antibiotics meant I got to get my PICC-line out. It was a total of 38cm long. I didn't feel anything getting it out. I was so happy that it meant I was able to shower like a normal person again! 

I finished my last oral antibiotics on Friday (1/4/19). I was so excited for my appointment that I had today. I was hoping that it would be good news. Thankfully my WBC and neutrophils shot back up to normal levels within a few days and I was told that I can be done with antibiotics!!!! Woooo!!!! 

So hopefully that concludes this journey. I'm happy that it's finally over with. I still have a little bit of swelling and firmness where the infection was. I did have surgery and they had to get all up in there and clean out everything really well. So I'm expecting that will take a while to completely disappear. I just can't wait for when I can fully open my jaw again so I can eat a burger or a sandwich. :) 

Thanks for tagging along and being there for me. It's meant the world to me. 

Emilie
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