Emile’s Story

Site created on January 3, 2019

If you know Emile, you know that he loves a good challenge. Whether he's joyfully biking up and down mountains in Costa Rica's rain and mud, gearing up for a kick-off against a top team on the rugby pitch, carrying two children and two carseats through the airport while maintaining good humor, or pursuing HUGE academic dreams with passion and vigor, Emile is unfailingly inspired and invigorated when facing a good test. 

For the past few months, Emile has been mentioning a need to visit an eye doctor. Last weekend, the vision changes that he had been noticing seemed to get suddenly worse, and were accompanied by a headache he couldn't ignore. A trip to the doctor sent him to the emergency room and then to Jefferson Hospital for Neuroscience, where we discovered an unwelcome visitor in Emile's brain - a tumor, likely cancer of the glial cells, in his visual cortex. Emile will be having surgery on Friday January 4th to remove as much as the tumor as possible, and will begin radiation and chemotherapy after a few weeks of recovery from surgery to help us evict this uninvited trespasser. 

Brain cancer will be Emile's next big challenge. It will probably be less fun than a mountain bike race, rugby match or research challenge. But we are up for the fight! Especially with good friends beside us, near and far. Emile is incredibly strong, and actually part super-hero. Our family and home are overflowing with love and joy. We feel incredibly lucky to have an amazing team of doctors working with us, and beyond lucky to feel so much loving support from friends and neighbors as we face the difficult road ahead. 

We will use this website to update you all when we have things to share as this journey progresses. 

With love, strength and gratitude,
Stephanie, Emile, Clara & Atticus.

Newest Update

Journal entry by Stephanie Bruneau

In these last few weeks of hospice we have had a vision of Emile resting peacefully on a raft, floating farther and farther from our shore. This raft has been drifting in a sea of our collective love, shared memories, and well wishes. (Thank you, all of you, for contributing to this beautiful ocean, it has been keeping me afloat too.) The raft has finally crossed the horizon line. He is still there, somewhere, but out of sight to us on shore. 

Emile passed peacefully last night, sometime before dawn.

His beautiful body will be planted in a wildflower meadow at West Laurel Hill Cemetery this weekend. West Laurel Hill is a place that is very special to our family as we have spent a lot of time there together keeping bees, biking, and admiring the trees and goats (yes, really, goats). I have a lot of photos of us all there together. I will attach a few. 

A little bit ago, someone asked Atty about his favorite color. I loved his answer: "all of the colors of the rainbow, PLUS all of the other colors, too."   This describes perfectly how I think we are all feeling right now -- all of the feelings in the rainbow, PLUS all of the other feelings, too. 

I will leave you with a piece of writing that I just discovered on Emile's computer, typed in a document addressed to me, written early in the morning on the day of his first brain surgery, 1/4/19:

"I just had a thought: I learned in physics that our physical mass never actually touches another – the outer electrons of each repel, giving us the illusion of touch. As a neuroscientist, I learned that our brains don’t really see the world, they just interpret it. So losing my body is not really a loss after all! What I am to you is really a reflection of your own mind. I am, and always was, there, in you."

Oh, one final thing: although we greatly appreciate the sentiment, we do not need any flowers or doorstep food deliveries. Because we have all we need, we are hoping that any desire to contribute will be directed towards the Germantown Mutual Aid Fund, or the Miquon School's financial aid fund (any donations to the school made in Emile's name will be directed to financial aid). 

With so much love and gratitude, 

Steph (& Emile).

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