Everett update! 

God continues to watch over our little boy and family giving us great news each time we go for clinic visits! Again, clinically Everett’s labs looked great on Tuesday 11/6. Platelet count of 2️⃣1️⃣1️⃣

On 11/7 we started tapering his Prograft medicine. This is the immunosuppressant medicine. Each Wednesday of every week we continue to decrease his dose. With this, we still have to watch for chronic GVHD (graft vs host disease). Chronic GVHD can occur anytime post transplant, typically within the first 5 years post transplant being at higher risk. The overall risk of developing chronic GVHD is 30-40%. It can occur in the joints, eyes, skin, mouth, stomach. The doctors will do range of motion test to watch for it in Everett’s joints, and we will closely monitor any other developing symptoms from home.

Superman and Wonder-woman had a great Halloween this year! This was the first year Everett was able to get out and celebrate outdoors! 

Adjustment at home are mostly all back to normal except for sleep still. We have tried just about everything. Nights are long with the kiddos and hoping we get out of this phase soon! 

Everett was evaluated for special needs services. He scored below average in a few areas so he will start seeing a developmental therapist and a speech therapist this to help him overcome obstacles for him to strive forward with his personal and daily needs.

Thank you for continuing to follow along our journey 🙈

The Roberson’s 💙