Some have been asking how Eloise is doing so we thought we would share a 6 month update!
Eloise’s heart is now considered repaired! We were initially told she would have a catheter procedure to check on her PH (pulmonary hypertension) at 6 months but that has been moved tentatively until around a year (due to covid and no signs of issues). She hasn’t been showing any signs of PH which either means A) her medicine is working or B) it is resolved. There is no way of telling unless she were to be taken off of her medication. She is on a slow ween process; she is continuously on the same dosage but as she grows, technically it is a smaller dose. The cardiologist discontinued two medications this past week leaving the PH medication 3x a day which has been much easier on all of us! At a year old they will discuss if she needs to have the catheter procedure and change the dosage of that medication.
She has moderate pulmonary stenosis (narrowing of the pulmonary arteries) which is normal from her ASO. They will continue to keep an eye on it to see if any interventions need to take place down the line.
We went to physical therapy to get some “kinks” out of her neck/shoulders and to help with her strength. It helped tremendously and she currently loves tummy time. We wouldn’t be surprised if she’s crawling around in the next month or so! From laying in a hospital bed the first month of life, she has plagiocephaly, fancy word for flat head. We will meet with the orthotist next week to get fitted for a helmet.
She is thriving and loving life. Eloise adores her big sister and is full of smiles when she’s around. Her scar has healed so well that you can barely tell it’s there. She is absolutely unbelievable and we are blessed to have such a tough cookie on our hands. Eloise is a true warrior.
Thank you to everyone checking in and the plethora of prayers sent our direction. We appreciate you all and couldn’t have made it without the love and support.