Ellie ’s Story

Site created on January 6, 2019

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Kim Martino

Hi!  We are almost home!  Never thought we’d be so happy to see Route 287!  We are making such good time coming home too-waaay better than the ride up!!

Ellie had a really good night, fever subsided and no issues with pain.  She’s been sleeping comfortably the whole ride, just waking to eat and take her Tylenol.  Such an amazing little girl.  

Tomorrow morning we go to Craniotechnologies in Hackensack to get her measured for her helmet. Unfortunately we have to go to Hackensack for the measurement and fitting appointments because she is surgical case, but after this we can take her to their Edison location for adjustments.  Just a few more steps and we will feel settled.  

Love you all xoxo
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