Ella’s Story

Site created on February 16, 2018


On February 17th, Ella was born in a small hospital in Syracuse NY.  She was (in our humble opinion) the most beautiful and blessed child to parents who were so happy to welcome her into this world.  She has since then grown into a compassionate, loving girl filled with wonderment and life who makes each day better for those who know her.
On February  17, 2018 Ella Rayne Beach began her chemotherapy for ALL (Acute Lymphocytic Leukemia) the most common form of Leukemia in children.  The purpose of this site is to provide an opportunity for people who love Ella in any capacity to communicate and stay updated on her progress. As parents we have always tried to instill the need to support those in need, from collecting food drives for the food bank to donating hair to Locks of Love; Ella has shown a propensity towards compassion and giving.  We are proud of her in so many ways for the beautiful person she has become, for the love she so readily shares with her family and friends. 
We invite you to help Ella through this difficult time.  We hope you to share your thoughts, your prayers and well wishes with a girl who would happily do the same for you.  If you are reading this it means that Ella holds a special place in her heart for you;  she misses and loves all of you.  We will be checking this site every day with the hopes of each message you send, every video you record, and each memory you recall may make Ella smile.
Nate and Mary cannot thank you enough for all the blessings you give to Ella. 
Thank you and God bless.
 

Newest Update

Journal entry by Mary Beach

Hello Everyone!
I am so behind on updates. I've reminded myself to post on here many times and then never followed through! Ella had a 6 month check up at Roswell on September 13th and all went well. The check up began at Oishei for an echocardiogram. It is not easy to return to that hospital. We had a little time after the echo before we needed to be at Roswell and Ella wanted to visit some of the floors we used to go to when she was admitted there. We went to the 5th floor to visit the sweet people who work at the Ronald McDonald room. We went to the Winter Garden room as well, there are such bittersweet memories-- bitter for obvious reasons, but sweet because of the kindness and love shown by the staff there. I couldn't bring myself to go to the chapel room where I used to write my prayers on cards and silently beg for everything to be better. Thankfully we weren't anywhere there too long. We headed over to Roswell for bloodwork; Ella's white blood cell count was 5.5 (normal is 4-11), hemoglobin was 12.3 (slightly low- normal is 12.5-15.5), platelets were 184 (normal is 150-450) and her ANC was 2,800 (normal is 1,800-8,000). I never heard anything back about Ella's echocardiogram results so I assume all was well with that.

Ella's been very busy. Since the last update, Ella did make her school softball team and was the short stop. Her proudest moment was sliding into a stolen base and ripping her pants (haha). She started high school this year and decided to try out for the JV volleyball team, having no other experience other than watching her mom play in a rec league during the summers. She made the team and during the first game, she looked at me from the court and mouthed "I can't do this" to which I replied, "you're going to have to" since she was already out there in a game. Well, by the end of the season, the girl who couldn't do it was moved up to the Varsity team and played in their last game as well as the play offs! She was the Libero and was absolutely amazing to watch! At the end of the season she was honored by her coaches with an award for the most improved player of the season. 

Ella attended her first Homecoming Dance in the Fall and has been enjoying time with her friends, studying and acclimating to high school. We couldn't be more proud of her. 

Ella's next check up will be in March. That will be her 5 years since her diagnosis, and 3 years post chemo. If all is well then, Ella will be considered cured of Leukemia! Then she will have Roswell check ups once a year. 

We wish you all a very Happy and Healthy 2023! Thank you for remaining on this journey with us, and as always for your continued prayers for Ella.❤️
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