Elijah’s Story

Site created on December 24, 2019

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Daina Philippi

Well, we have been in Omaha since Saturday night. He spiked a fever just before supper time which meant an ER visit.  After some blood cultures and some antibiotics he got to ride in an ambulance to UNMC while I nervously drove behind them. 🙁
Fevers have been up and down over the last few days and every time he spikes, it’s another 48 hours on the clock that we have to stay and wait! 😳 
He has lost at least 5 pounds since we have been here. Today’s weight says he’s up 9 ounces!!! 🙌🏻🙌🏻 We are both really hoping he doesn’t need a feeding tube!!
His hair started falling out in big clumps so he asked if I would just shave it. Luckily my parents had clippers so I was happy to oblige. The nurses have been saying how tough he looks now! 😊 
We appreciate all of the calls and texts to see how he is doing! ❤️❤️❤️ 
Hopefully we can get out of here before we have to be back next Tuesday for his next chemo treatment. I told him not to make a habit of this!!! 😂 
🧟‍♀️ Daina (aka mombie) 
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