Eden’s Story

Site created on July 19, 2020

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Eden was born on October 15, 2020 weighing 4lbs and 6 oz and measuring 18 inches. She has been diagnosed with Trisomy 13, Double Outlet Right Ventricle, and Dandy Walker Syndrome.

Simply put, Trisomy 13 occurs when there is 3 copies of the 13th chromosome instead of the usual 2. It occurs due to a random error at conception. It is rare and only occurs in about 1 in 10,000 live births. Unfortunately, trisomy 13 is often classified by medical providers as “incompatible with life” and the statistics for survival are very bleak. Devastatingly, only about 10% of children born alive with trisomy 13 will survive past their 1st birthday. However, Eden’s parents, Lauren and Baylor, have chosen to cherish and fight for Eden’s life regardless of the number of days in it. Please join us in praying for our sweet miracle baby.

Newest Update

Journal entry by Lauren Wagehoft

Friends and family, 


I’m so excited to share about a fundraiser I am working on in honor of Trisomy awareness month to benefit an organization that is so near and dear to my heart, The Stella Effect. 


Those who are familiar with Eden’s story know that hedgehogs and roses have become special reminders of her. Hedgehogs remind us of Hedgie, the musical hedgehog toy she loved in the NICU. Roses remind us of her because of her middle name, and also because of a special gift that I received the day after she passed away. 


Cards have become so special to me recently. There have been many times where a simple note or card from a friend has brightened my day and kept me going. It is always a comfort to know that people continue to remember Eden and think about us in our grief journey. That is the heart behind these cards, that they would be used to send encouraging messages to someone who may be in need of a “hedgehug”. 


The card is a painting of two hedgehogs, to represent both of my children who bring me so much hope and light. The card was designed by a local watercolor artist Lil and E who brought my vision to life in the most beautiful way. I am so in love with how it turned out. 


The cards will be available for purchase at the link below from now until April 11th.💗


Thank you in advance for helping us honor Eden’s life and also benefiting a wonderful cause! 


Love, 

Eden’s mom


https://www.thestellaeffect.org/store


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