Today Drew showed us how tough she is yet again. Today started out hard.. we started at ENT and had to do a scope while awake to look at her vocal cords. It was tough, but as usual Drew killed it. After a vascular ring repair, vocal cord injury occurs in 25-50% of patients. Drew does not have a vocal cord injury so that is great! The ENT that we met today will also be on Drew’s team moving forward. After that appointment we hustled over to meet the rest of the vascular ring and airway team. In total we met with Pulmonology, GI and General Surgery, Anesthesia and pre op. It was a long day of appointments and a lot of good chat and information, but nothing will be decided until after tomorrow. So tomorrow is going to be a big day for Drew. Anesthesia and procedures are not fun for her, but we are ready to rock it like usual so we can make a plan to get her healthy. Although we had a long day of appointments today, we made sure to get some sunshine at a park and have some pizzas. Lots of love and one on one time for this kiddo. 

Prayers for our sweet Drew. This gets harder the older she gets and is able to understand and comprehend what’s going on. She has developed a lot of fear from her last year of testing and procedures and it has made for a lot of tears. But honestly this kid still continues to blow us away with her resiliency and ability to smile through all of it. We really were blessed with such a special little thing.  Thank you for all the continued love and support. I will do my best to update tomorrow when I am able. 🤟🏼❤️