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Apr 21-27

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Today is 2 years post transplant - called by many his rebirthday.

Remember the really expensive oral chemo drug that made Doug go into clinical remission oh so long ago.  Well last night was his very last dose!!  

Tomorrow he is planning on having a grapefruit with grapefruit juice and a Squirt on the side.  He's been missing grapefruit - because he was told he couldn't have any.  :)  I told him that he can't have millions of dollars ... so you know what that means right?  <wink wink> 

The doctors moved his 2 year survivorship appointment up a couple of weeks and all his blood tests look fantastic.  Everything is in normal range - except the creatinine - the kidney marker.

I'm sure you also remember the episode at the Emergency Department in February 2019.  Well it turns out that between the chemo, radiation and that emergency visit Doug's kidneys took a hit and have not recovered.  He has now been diagnosed by Dr. Flood (really) as having Stage 3A Chronic Kidney Disease.  This is the lowest level of Kidney Disease and doesn't require any treatment.  Dr. Flood will continue to monitor his kidneys to make sure nothing advances or deteriorates.  

Doctor appointments are now stretched out to 6 months for 2021 and then annually after that until 5 years post. Happy dancing!

Endurance and strength are improving all the time.  Looking at him I don't think anyone would guess that 2018 was the year he had Leukemia.

He told the doctor that he isn't worried about Covid-19 because he's 2 years old after all and it doesn't seem to affect kids too often.  The doctor cracked up when he told her that.  Same goofy sense of humor.  

Very very mild graph versus host disease of his skin which the doctor sees as a good sign still.  Given a list of symptoms to watch for but the doctor isn't too concerned.  Each day lessens the chances of relapse so keeping fingers and toes crossed.

Hope that everyone has a safe and happy 2021.  Thank you one and all for all the support during this adventure.  

Love you all !!

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