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May 24-30

This Week

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Over night I struggled (unknowingly) with my heart rate. Groggily I remember a doctor and nurses attending to me.  They hooked me up to more monitors, did an EKG, turned my O2 up, put me on a pulse oximeter, and had Cardiology visit me this morning. The doctor during the night stood outside my room at one point then assured me that my EKG looked ok. Apparently they were picking up some things on the heart monitor that suggested bradycardia due to a very low resting heart rate and when awake I have consistent tachycardia so I have both extremes.  The cardiologist said they will monitor in future and talk to me after the nuclear stress test to see how the blood flow to the heart is. For the heart rate they don’t think as of now I require any treatment. Jenn, my daughter experiences conduction problems and has bradycardia arrhythmia with her heart rate. I am praying it will disappear or resolve with time. I need to place it in Gods hands

I met with two Hematologists. I have Sarcoidosis of the spleen and liver now. This news was hard for me to wrap my mind around. They told me that they believe when Steroids were stopped last year, even though to the eye I was thriving, the sarcoid became more active in other organs . My liver is affected but my spleen is more of a concern. Due to the inflammation and formation of granulomas, it is causing my spleen to swell. These grandulomas are clumps of inflammatory cells that form in organs due my overactive immune system.  It’s hard to understand why my immune system is hurting me instead of protecting! The accumulation of these granulomas within any organ affects the function of it. Dr Hand explained that my platelets are low, but it has not gone into my bone marrow. Treatment needs to be done (and slow process) at Hershey because this is where the Sarcoidosis specialist is. My appt isn’t for about 6 mons. I’m glad because with this pandemic I might have needed to wait longer. It isn’t something they can resolve overnight.  If they treat the Sarcoid too aggressively with chemo related drugs it may create other serious problems. I’ve had these issues in the past where aggressive treatments lead to more severe situations. There is no cure or medication specifically for Sarcoidosis especially when it affects multiple organs and systemically. They said it isn’t something that has a quick fix. They will try to get my platelets up and hope it doesn’t affect my bone marrow. Slow and steady and PRAY for healing. 
They don’t have an easy solution for the other areas affected by sarcoidosis either. I need to work with Hershey or my care team if things continue to evolve.
But God!...no matter the circumstances, God holds present, this process and in the means to an end. I’m trying to listen to my doctors but if they share a concern or fear tries to enter, I can remember to say “ But God” plus the opposite. My example is....I get discouraged, BUT GOD encouraged me. My body is ill, BUT GOD is healing me within and He is my hope for healing. Sometimes this is hard to take captive these thoughts and circumstances, But God gives the strength to overcome. The enemy will not get the last word.

The enemy will not be victorious, even in any disease or death itself. God needs to be my refuge and strength! I am not chained to this illness, I have victory and because of God’s grace, I have a future. I will return HOME, maybe not today but soon and very soon, All is Well (AIW). There is HOPE! Praise God for the healing and improvements that happen all the time that we do not see, feel or notice His touch. While here I get to think and pray about others in the quiet moments, even more in those weak periods. The Spirit helps by praying or intercedes for a need.  Romans 8:26....”Likewise the Spirit helps us in our weakness. For we do not know what to pray for as we ought, but the Spirit himself intercedes for us with groanings too deep for words.”

2 Timothy 2:9 . .for which I am suffering even to the point of being chained like a criminal. But God’s word is not chained.”

Matthew 19:26. “Jesus looked at them and said, “With man this is impossible, but with God all things are possible.”



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