I am amazed at how parallel our lives are. My illness started in April '07. I had the ILD first and had the lung biopsy in Sept 07. The Dermatomyositis came after that. My daughter has Down Syndrome and just graduated from HS last month. My son has a seizure disorder and will start HS next month. I am thankful I am still married and my wife can help me out. Our roles have completely reversed and we both enjoy certain aspects of both roles. I know it is the power of Christ working in our lives that help sustain us. I cannot imagine going through this without Him. When I was about to be wheeled in for the lung biopsy I experienced the "peace that surpasses understanding". My faith has increased so I thank the Lord that if this is what it takes to bring me closer to Him then...so be it.
I have seen God work in ways I never expected and by people I never would have expected either. One example: I was chosen by a family to be the recipient of a Christmas tradition. Their tradition was, whomever was hosting Christmas chose a family in need and whomever showed up and wanted to contribute would do so and they would enclose all the money donated in a card. I don't think I stopped crying for at least ten minutes. God is awesome and I know He will show Himself to you in many ways.
Our lives have definitely changed, but God is still the same. He is guiding us on this path. We just need to remember He is in control and we need to put our absolute trust in Him.
I will continue to pray for you and you kids.
God bless & strengthen you,
And He said to me, "My grace is sufficient for you, for My strength is made perfect in weakness." Therefore most gladly I will rather boast in my infirmities, that the power of Christ may rest upon me.
2 Corinthians 12:9