I'm so glad you have started one of these. A friend of my daughters' had back surgery and she started one. It was a great way to be in touch.
I'm sorry for your long, hard journey. I can't begin to imagine how you've been coping other than through Christ.
I pray that you and your family will know God's love and peace in this trying time; that the Lord would give the doctors wisdom; and that you would continue to feel His sustaining love.