David’s Story

Site created on April 4, 2016

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Andrea Joseph

Dear Family, Friends and Colleagues,

This is Andrea, writing for David, or Dave, as most of you know him!

Recently, David had a seizure, which is very common in GBM but which, until now, has not been the case for him. He started on an anti-seizure medication about the same time he started a blood pressure med. Then they switched him from one anti-seizure med to another, and while the new med built up in his system he was on two drugs concurrently. Whether all this was the cause of a big drop in heart rate we can't know, but for several days we were very concerned that he might have to go to the ER because his heart rate was hovering around 38-40. His neuro-oncologist wanted him to have an EEG to learn more about the seizures, his Primary Care Physician wanted him to have an EKG to check his heart, and of course, he would also get an MRI.

At the same time, David has had increasing episodes of confused thoughts, and has been getting weaker and requiring more assistance to stand and pivot in order to transition from one chair to another or to bed.

This all led to the realization that we needed to revisit how many tests, procedures and treatments to which David would want to submit. And so yesterday, David and I were joined by our sons Seth and Jesse to give him the opportunity to discuss and reflect, and to decide what steps he wanted to take - or not take.

The result is that David re-committed to the decision he made months ago that he did not want tests and/or procedures or treatments that would have little likelihood of improving his quality of life. We will be arranging for hospice services so that he can remain comfortable at home, and focus his energies on the things that are most important right now: his family, the memoir he has begun work on with a ghostwriter, consulting as possible with colleagues on the work that has been so dear to his heart, and staying in touch with his friends.

As always, we thank you for your love and support throughout this hellish journey.

Love,

Andrea

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