Dariush’s Story

Site created on July 29, 2019

Anyone who has met our little Godson, Dariush (Dari), cannot deny how special he is!  Dari has a peace and happiness about him that invokes joy and pulls on your heart strings. :)  

Dari was diagnosed with Down Syndrome (Trisomy-21) on September 27th 2018, just 24 hours after being born. Unaware of this diagnosis during the healthy and uneventful pregnancy, Nima and Emma (Dari’s parents) were blindsided by this new condition and the attached health complications!  

Dari spent the first several weeks of his life in the NICU, struggling to breathe.  During this time he was further diagnosed with a small hole in his heart and received treatment for a transient form of Leukemia (TMD).  Since then, Dari continues to astound us with his strength and resiliency as he happily grows day-by-day. 

For some reason Down Syndrome children are more prone to leukemia.  Children who had the transient form of leukemia (TMD) are closely watched for signs of it returning as Acute Myeloid Leukemia (AML). This doesn’t always happen. However, Dari was diagnosed with AML on July 17, 2019.  He was admitted to Doernbecher's Children's Hospital that week and is still receiving care today.  

If you look up AML on the internet, you will likely find information that describes a grim prognosis.  Nima and Emma would like to encourage you to not seek information about childhood AML online, as Trisomy-21 (T-21) patients are found to have a different experience and outcome with this type of cancer.  For reasons the doctors are not entirely sure about, AML is more treatable in T-21 children.  Our prayers are that Dariush would be one of the many that get completely healed and go on to have a healthy life.

More than anything, we are asking for your prayers.  Nima and/or Emma will be at the hospital with Dari 24/7 for the next half a year of treatment.  This has already taken a great toll on their life as a new little family. At this time both parents struggle to continue to work full time while trading places by Dari’s side. 

In addition to building a community of support on CaringBridge, we are also asking for financial assistance.  More information about the Duncan's financial needs will be connected to their GoFundMe site, which you can access by clicking here:  https://www.gofundme.com/f/dariushduncan?utm_source=customer&utm_medium=copy_link&utm_campaign=p_cp+share-sheet.

Please be aware that the "Tribute" icon on this site is for donations to help with the maintenance of the CaringBridge website and not for the Duncans.  Be sure you understand that to donate specifically to the Duncans you will need to do so on Dariush’s GoFundMe campaign page.  

We hope you will choose to follow Dari on his journey as it continues to unfold. Thank you!

Newest Update

Journal entry by Emma Duncan

Over the last few weeks we have made the most of our "freedom" in quarantine. Many home cooked meals have been made. Dance parties, naps, family walks, reading time and art project have become almost daily routines for the three of us.

Our free time however is coming to an end. Tomorrow I return to work and I am anxious. Honestly, how can anyone go right back to "normal life" after going through a fight with cancer? The last nine months have reminded me that life is too short. A lot of internal reflection has helped me face the truth that my own dreams and ambitions have been ignored. It also has reminded me that my family looses out when I am working.  They tend to get the "leftover me" at the end of the day. The tired zombie me! 

Although I am thankful that I can work from the safety of my home - especially with so many loosing their jobs right now - there is a part of me that asks, "Do I really have to return to work?". The answer is, YES. Like most couples, we need to be a two person income to make ends meet. So for now I take a deep breath and prepare to go through 500+ emails in the morning. 

Is it even possible to
 juggle an active toddler while we both work from home? We will find out.  Dari has become very familiar with always having access to me. I worry that when I do sit down to work it will be frustratingly impossible.

The whole 8am-5pm also worries me. As we sleep train Dariush, his schedule is quite regimented. He wakes at 6am, dinner at 6pm (he lets us know if we are running late), bedtime routine starts at 7pm and asleep by 8pm. That means that I will be up with him at 6am, start work by 8am and as soon as I am off I will be cooking, feeding, and prepping for bedtime. My days will not have room for any error or personal time. This really concerns me. Self care and Family should be the most important thing in my life. I hope that I don't loose sight of that but somehow find time to relax with Nima, embrace my ambitions and dream without closing your eyes to sleep, and maybe even sneak in a walk or shower. :-S 

If you think of us tomorrow, please pray for God's mercy! 
Patients and caregivers love hearing from you; add a comment to show your support.
Help Dariush Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Dariush's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top