Daniel’s Story

Site created on August 15, 2010

See More photos at: http://daveallenfamily.shutterfly.com/ (http://daveallenfamily.shutterfly.com/)
View YouTube Videos: http://www.youtube.com/laniallen79 (http://www.youtube.com/watch?v=6YbiGWzy4tU)
(http://www.youtube.com/watch?v=SkLCa7vRQ4s)

INITIAL DIAGNOSIS
Daniel, who is now 7 years old, was diagnosed with Medulloblastoma (brain cancer) on August 20, 2009. He was initially treated with surgery, radiation, & chemotherapy. At that time we were told that the prognosis was 70-80% cure rate with a planned treatment course of approx. one year.

UNFORTUNATE SETBACK
Unfortunately, on June 30, 2010 we found out during a followup MRI that his cancer had returned during treatment. His prognosis has gone from a moderate risk to high risk... with expected cure rate of approx. 40%. The plan of action was changed and he underwent a new chemo regimen from July through December 2010.

SMALL MIRACLES DO HAPPEN
September 21, 2010 Daniel received a follow up MRI scan that came back with significant improvement (almost undetectable) and the lumbar punture showed no visible signs of cancer cells.  This made it that we were able to move forward with the new proposed plan. In December he received High Dose Chemotherapy with Bone Marrow Rescue (where Daniel will be his own bone marrow donor).  This was followed by a repeat course of 15 doses of radiation. The Bone Marrow Rescue was followed by 100 days of radiation.  All MRI's since have shown no cancer present. 

DISHEARTENING NEWS

Daniel's July 7, 2011 was supposed to be the final MRI before being on maintenance. It was supposed to be the MRI that said we were done with treatment after 2 years. However, the scan came back showing that the cancer had returned. It is aggressive and resistant. There are no more treatment options left. Daniel will have a few weeks to 1-2 months left with us.

Despite all of this Daniel is a fun-loving, caring, silly, and happy boy. He reminds us daily how precious each moment is.

MAKE A WISH
Daniel was selected by the Utah Chapter of MAKE A WISH to become a Wish Kid. Daniel received a key in the mail that unlocks the Wish Tower. On August 18th Daniel got to place his wish in the wish tower. He wished to meet Lightning McQueen from Disney's Cars. At the end of September, we flew to Orlando, Florida to Disney World to meet Lightning McQueen.  We had an amazing once in a life time trip that we so desperately needed. It was wonderful to see Daniel be a kid and have more fun than imaginable.

HopeKids (www.hopekids.org) 
Daniel joined Hope Kids, a non-profit organization that provides opportunities for children with cancer and other life-threatening illnesses to participate in activities as a well-needed break from the continual medical treatments. So far, Daniel has been able to go to Arcade Madness at the SkyBox, The Dino Show at the Utah Natural History Museum, Thriller, and seen Nanny McPhee Returns and Rio in a reserved theatre, Journey to Bethlehem, the Renaissance Festival, and the Living Planet Aquarium.


Newest Update

Journal entry by Lani Allen

Daniel,
Today would be your 18th Birthday! It’s hard to believe that it has been 10.5 years since you’ve been gone. Where has the time gone? Today we wore RED in your honor. We also watched photos and videos of you, ate cake & ice cream and watched “Cars” in your honor. 

Watching the photos and videos brought back so many memories. Some of the memories are harder than others but so many are wonderful memories. You made going through cancer not so difficult. You always had a smile on your face and brought a smile to others with your humor and sweet nature. You taught many that although you may not be able to control your circumstances... you can control how you respond to those circumstances. You can choose to have a poor attitude or find the bright side and focus on that. It’s a much happier place to be... that’s for sure. You showed us that the most important thing is to “love each other” for who we are and where we are on our journey. Thank you so much for just being you! You will always be in our hearts.
Love you always 😘

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